Hi there, I very sadly had a miscarriage in September after being told at the viability scan that my baby had no heartbeat and had stopped developing around 6.5wks. It was from a frozen embryo transfer so I was told to stop all my medication which brought on the very painful miscarriage several days later. After this, and at the next scan I was told the miscarriage was incomplete and I was still getting bold positive pregnancy tests for ages afterwards. I am still today waiting for a period and for it to complete. Has anyone else waited more than 2.5 months for this to happen?
I didn’t want to opt for surgery as I’m too worried about scar tissue forming and it causing more fertility issues. I still don’t have my rainbow baby so I didn’t want to do anything that could jeopardise a future pregnancy.
I’m getting very fed up with it now. I have had a day of spotting two weeks ago and still nothing. Pregnancy tests are. Now negative since 1.5 weeks ago.
Just wondering if anyone else has experienced anything similar?
Thankyou 🙏🏼
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Singershope
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I just wanted to say I’m so sorry. I know from my ectopic pregnancy experience how a prolonged loss involving medical treatments can just make it feel like it’ll never end, and how difficult it is to process your emotions and start any healing. So I’m sending lots of hugs. Is there still a sign of something in the womb on scan now despite the urine HCG turning negative? If there is then only advice as such I can share is whether it would be worth asking to look at hysteroscopy for surgical management if needed because at least then this is under direct visual and shouldn’t cause any scarring, in fact could help treat any. I know in many areas in Europe now they do hysteroscopy rather than blind MVA/D&C to manage miscarriage to avoid damage and scarring. Sending love ❤️
Hi, thanks so much for this advice. I have been seen by my local EPU as my clinic won’t see me until my miscarriage is complete so they’ve gone off the radar.
They just said it’s my choice and I can wait for my period but I am worried as although there’s no visible baby on the scan now, there is placental tissue and mass of clots inside as I had developed a subchorionic hematoma during the pregnancy. That’s great to know about the guided hysteroscopy as I haven’t been told this. Do you have to pay private for this as I’ve not been offered it on NHS? Thanks so much for replying and also very sorry to hear about your ectopic pregnancy 😢
it probably isn’t their first choice of management because it is probably a little more expensive but hysteroscopy is readily available on NHS (I managed to get my recurrent implantation failure investigation one via NHS). I think given your previous history of having adhesions following surgical management, and there are plenty of papers (just look at PubMed) showing hysteroscopy superior to avoid future adhesions and preserve future fertility, I think you can try and push for it and if they say no really grill them as to why/why not! It can’t just be for a “computer says no” reason. I would definitely make sure you get to speak to consultant in charge of EPAU about any management options and not just a SHO (and this is coming from someone who’s been a O&G SHO - I don’t mean any disrespect I just mean you do need to go to the top sometimes). And as I found with my loss sometimes having your partner/ dad whoever in the room to help make your case as otherwise sadly I do find I get dismissed as hysterical woman! Best of luck xx
Hi I am so sorry to hear about your loss. I had a similar loss in July at our 7 week viability scan to be told I’ve had an early miscarriage. After stopping all medications and nothing happening I still tested positive weeks and weeks later which was very painful so was advised an MVA by the doctors as it’s not safe to have the tissue building up inside, which was done quickly and efficiently. I’m now 4dp 5dt and waiting eagerly for the result. It’s such a roller coaster of emotions x
Hi there, thanks so much for replying and I’m so sorry to hear of your loss, it’s just so devastating. Thats good they gave you the advice. My clinic won’t see me until my miscarriage is complete so I’m just going through the NHS hospital EPU and they’ve said it’s entirely my decision. The baby has passed but what’s left is some clots and placental tissue. I have no signs of infection but I’m waiting for a period which I pray comes soon. I am now looking into hysteroscopy and see what o can do with that.
Also, sending the best of luck and lots of baby dust to you! It really is a rollercoaster and it’s also a scary and exciting time in the TWW. I hope you have your rainbow baby! X
I had a loss at 8.5 weeks and opted to pass naturally - which didn't happen. I then had medical management which was excruciating and didn't completely the process - I was still getting strong pregnancy tests.
I then was told to wait for my period and that didn't get rid of it either - there was retained tissue. Eventually I went private (because my EPU was being absolutely rubbish) and had a hysteroscopy and D&C to remove it all.
I had a scan since and no scar tissue at all.
This took nearly 5 months - it was a truly exhausting process - I would definitely opt for surgery straight away if it happened again.
Wow! Thats sounds awful and this is now month 3 so I’m getting very fed up. I am going to look at private hysteroscopy as I know the NHS won’t do that. Do you mind me asking how much it cost to do this? Did you just use a an IVF clinic?
Thanks for sharing your experience and I’m so sorry as it sounds horrific. I wonder why some miscarriages just don’t complete properly.
Thank you - it's such a weird feeling - I was testing often to see if the levels were dropping and even though I KNEW it wasn't going to continue I kept hoping to see the positive test. Absolute lunatic....
I am very lucky to have private health insurance with my work but I think it was about £2k. I went to a private gynacologist rather than an IVF clinic.
I am so much better now thank you - physically I never really had any side affects (except the medical management) but mentally it did take its toll. I feel like a weight has been lifted from my shoulders xx
That’s so good that it was sorted for you eventually. I do have private health with Bupa, inform asking them to refer me to a private Gyne? I’m also going to ask NHS too anyway! I’m so fed up 😓
Yes I would defo do this. The NHS just didn't seem too bothered - they said they could see 3cm of retained tissue which would probably pass with my next period - but as I was still testing positive I went private.
The consultant was horrified that they had said to leave it - she actually removed 12cm of necrotic tissue and said it was incredibly lucky I didn't get an infection.
Wow! Thats nuts! I’m very much conferring this anyway and phoning around today. The NHS just keep telling me it’s my choice and that’s it. No real advice. I’m glad you finally got it sorted x
Yes that's exactly what they said to me - they made it sound like it was totally fine to leave and also my choice - which is was but I would have loved some guidance xx
hi Singershope, my first miscarriage was similar to yours- incomplete. I only had bleeding for a week and then nothing but tissue still showed on the scan. It was dragging on for a couple months- mentally I found it really difficult. They made me an appointment at the EPU and I had a uterine scratch which helped my uterus contract enough for the rest of the tissue to come out- it was completely natural. Perhaps you can ask for this? X
Thankyou for replying. I’m so sorry to hear of your loss too. Thats good to know as also haven’t been told/ offered this. I will also keep this mind. Really appreciate the advice x
Hi, it is a rubbish situation. I think if your tests have now gone negative, that's a really good sign and you might not need an op. I seem to remember them saying a period should come around two weeks after the negative test. I've had three mmc and my period started three weeks after and one was almost four weeks after.
Hi, I’m so sorry for your losses. It’s awful. This is my second. That’s good to know. Apparently from my scan she can see my lining is trying to build up again which suggests I may have ovulated a little while ago so she said give it 2-4 weeks. I’ve been having some twinges so I’ll see and then if not I think I’ll look the hysteroscopy/ Surgery route. It’s nuts how long it can drag on but then I guess seen as though my pregnancy tests were positive for so long, a period would not have come then anyway! Thanks for the advice x
I'm so so sorry for your loss. I was the same as you and didn't want surgery for fear of scarring. I did miscarry spontaneously 2 days after finding out there was no heartbeat but had retained tissue (bled a lot, was 12 weeks but growth stopped just after 9 week). Tried medical management twice which did nothing. Went on for 6 weeks and got covid and then Christmas and eventually decided on MVA under local because the catheter is a softer plastic (apparently) and I wanted to know how it went (took less than 5 minutes). I did have a hysteroscopy a few months later for peace of mind/biopsy and no scar tissue. It's all very individual and it's so hard to know. Whatever decision will be the best for you. Xx
Thanks for sharing and so sorry for your loss too. It’s so hard and the further you get along the more hope you have so when it all goes wrong closer to that 12 week mark, it’s truly devastating (well all of it is, regardless). It’s definitely something I may have to do depending on if I get my period soon. I’ve had a miscarriage before and it was all completely over with in a few days. I never knew it could go on this long. Thanks again xx
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