NHS Eligibility Changed just before starting a Cycle. FSH, AMH

[Cuppppatea]

NHS Eligibility Changed just before starting a Cycle. FSH, AMH

I had a round in August which was unsuccessful and a disaster. No blasts. Think the timing was all wrong.

Before that my AMH was 2.2 and FSH 7.

In my borough you need either 1) above 5.5 AMH or 2) Bellow 8.9 FSH

Mid Sept – Email confirming pre-treatment appointment.  

 Late Sept – We attended the clinic, confirmed our treatment plan and discussed medication with nurse. I believe she checked this with you in person while we were still there. I was told to attend a scan on 10th October and book another for the first day of my period. Due to start treatment late Oct.

Early Oct - Attended clinic for scan. Blood test from 28th Sept flagged higher FSH this was 26 -

(HIGH because It was done on day 11 during my ovulation phase??.)

Lots of confusion about next step. I was called by DR and told I had to retest day 2-3 of my period.

I decided Saturday being day 2 (Being unsure if I started my period late on Friday night or Saturday and Sunday tests being unavailable)

Feeling nervous about the process I decided to go for a private blood test Monday night. (Realistically I know now this was day 3)

Fastforward to the test results: NHS say FSH:15 AMH:1.8

Private say FSH:8.9 AMH:2.2

NHS told me over the phone that I now do not qualify for treatment.

I have contested this result and the decision, I was due to start a cycle next week - obviously won’t know. I haven’t heard anything back.

Any one else have this experience?

[Anxiousintrovert]

I haven’t been in your situation, but just wanted to wish you best of luck and hopefully things will go your way

[JA-fnuk Partner Nurse Fertility Network UK]

Just to let you know thinking of you - hope you have people around you for support

Take care of yourself

Janet- Partner

[Mlove12]

Oh this is so frustrating. I would definitely question this, especially since you were due to start a round anyway. When I had my treatment, I only needed to have AMH checked again if our cycles went over a year, just so they could keep an eye on it, so I would also question them why they would need to check again straight after a failed cycle as there isn’t much time between this one and the next one?

Hope it all works out, sorry I cant be much help x

[Cuppppatea in reply to Mlove12]

Thanks for your reply. They do say eligibility is assessed prior to each cycle but It’s so frustrating…I had already sat down and been told what medication I would be on. Should have refused to test as the figures they had were within three months. I have written to the lead consultant and will write to the ICS chair or head of commissioning if they say no. I was due to start on Monday and still haven’t had a reply from the consultant 😕

[Doodlebug23]

I don’t have experience of this but just wanted to say I feel your frustration of hurdles seemingly put in your way when all you want to do is get on with the cycle. Good luck 🤞🏼

[Cuppppatea in reply to Doodlebug23]

Thanks so much. I saw you have a line????? x

[Doodlebug23 in reply to Cuppppatea]

I f do I but very very faint… I’m so worried it’s an evap line… went for bloods today x

[Cuppppatea in reply to Doodlebug23]

sending love x

[Doodlebug23 in reply to Cuppppatea]

Thankyou! X

[Cuppppatea]

GOOD NEWS! Dr called and is happy to accept the private blood tests. I was supposed to start Norethisterone Tuesday but we have tried to conceive naturally this month so will go next month.

Incase anyone is interested: DHEA arrives next week and I thinking to do 25g a day until I start. (Testosterone is 0.7)

Dr has called today and talked through the plan:

Last AMH: 2.2 and FSH: 8.9

He has added suprecur trigger 2ml with the Gonsai and given me the option of adding clomid into the mix - he said I should research and let him know - he said the downside can be thinning uterus lining for fresh transfer. (Last time I was told on egg collection that progesterone was too high for fresh transfer)

Nothisterone 5g twice daily on day 18

Meriofert 75 +Fostimon 225

Fymadel 0.25

Gonasi 10,000 + Suprecure

orrrrrr

same protocol with 150 clomid +Meriofert 75 +Fostimon 225

I would appreciate any thoughts.

xx

[Anxiousintrovert in reply to Cuppppatea]

Yay! Now best of luck with your treatment x