Anyone else had bad news from an HSG ... - Fertility Network UK

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Anyone else had bad news from an HSG test - what does it mean?

Lolalules profile image
10 Replies

Hi all, just found out I have a blocked left tube but am having to wait weeks to speak to consultant again to see extent of damage. At the same time, our IVF consultation is next week and we have the option to book in straight away (as self-funded postcode).

Ive read that blocked tubes can have fluid that causes implantation failure. We’ve had two natural miscarriages - so I don’t want us to pay for this with risk. Does anyone know if our HSG test results will show the extent of the damage/fluid? Has anyone had the same thing, and know what next steps are? Thanks so much in advance as we’re so confused and worried 😟

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Lolalules
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10 Replies
Roobs33 profile image
Roobs33

Heya,

I’m having a laparoscopy next week to remove or clip an inflamed/fluid filled tube. I had an MRI to see endometriosis damage and they picked up on this. I had a consultation with the fertility dr a few days later and he said that it would make my chances of successful IVF so much higher if I have it sorted out first. I’m not sure if it’s different because I have endometriosis though so I guess you should try and get the opinion of a fertility/gynecology specialist if you can. I’m not sure about the HSG test either I’m afraid. Good luck with everything x

Lolalules profile image
Lolalules in reply toRoobs33

Thanks so much for your message and for sharing - good luck with the procedure next week! Sounds like I may be following after you x

KLADY123 profile image
KLADY123

Hi Lolalules

My hsg showed a blocked left tube, the hsg does not show the extent of the damage and if it is filled with fluid or something else just that it is blocked.

In order to understand the full extent I needed a laparoscopy, this for me showed the tube was beyond repair and they removed it. My right was still ok but I have adhesions so I dont know if it is able to pick up the eggs so went straight to ivf.

If the tube is filled with fluid (hydrosalphynx) there is the theory that the fluid can leak into the uterus and prevent implantation so that is why they prefer to remove it before ivf. Given your history this might be the suggested way forward for you but I am sure your clinic will give you the advice you need. It is interesting that you have managed to concieve naturally a couple of times so it seems your other tube is able to pick up, perhaps if the tube is removed you will be able to fall and carry naturally to term- again i am sure you clinic will talk this through with you in more detail.

After my tube removal I waited a couple of months then started an ivf cycle, it went really well and I had 4 good quality embryos on ice and I'm about to start my FET this month. I dont know for certain but I always felt instinctively it was a case of the eggs not meeting the sperm and if they could just meet all would be well. Who knows though, not sure how many FETs I will need but I am hopefull and trying to be positive.

All the best and feel free to keep in touch or PM me with any questions as someone who has been through tube blockage/removal etc

Xx

Lolalules profile image
Lolalules in reply toKLADY123

Hi, thank you so much for this - it’s really helped me understand a little more and next steps. Will DM you if that’s ok. Also hope all goes well with the FET - keeping my fingers crossed for you xx

DianeArnold profile image
DianeArnoldPartnerNurseFertility Network UK

Hi Lolalules. Sorry to hear you have problems with your tube(s). The HSG test will definitely show up any blockages and hydrosalpinges (blocked ends). As you mentioned, if excess lubrication can't leak into the pelvic area, it can only go into the womb, possibly preventing a developing embryo from implanting. Your specialist will discuss whether you need to have your tubes clipped or removed if this is the case, before starting IVF. Good luck! Diane

Lolalules profile image
Lolalules in reply toDianeArnold

Hi Diane, thanks so much for the reply. Ah ok, that was one thing I was confused about - whether a hydrosalpinx was different to blocked tubes (and therefore whether fluid was always a byproduct of blocked tubes. Sounds like I just need to push to speak to the specialist before taking any next steps with the IVF clinic - thanks so much!

PurplePiggie profile image
PurplePiggie

Hiya, I had a HSG done and my left tube had a hydrosalpinx so I went on to have a laproscopy to investigate/treat and my tube was removed as I was advised that the fluid can prevent implantation so it wasn't advised to proceed to IVF without having the tube removed, so I'd say although it's frustrating to have to wait it's definitely worth following up with the consultant before booking in for IVF. Good luck with everything xx

Purple276 profile image
Purple276

Hey,

Really sorry to hear that it showed up a blocked tube but I agree with the other ladies here best to get it dealt with as it could risk healthy embryos.

My HSG showed a blocked tube but the nhs response was 'you have another one it's fine' and made a IVF referral. The clinic did an internal scan before we started ivf to check the number of follicles and on that could see the fluid and sent us back to the NHS to get dealt with before we progressed so the clinic might be able to see how bad it is if you discuss this with them at the appointment?

I will add though that while I had my left tube removed (I basically called every week until the hospital confirmed they had booked me in and got a cancellation- don't be afraid to be a polite nuisance!) a year later when seeing a Acupuncturist for my IVF round he mentioned that was something he could have cleared naturally. Now not sure your thoughts on that, or if I was convinced but if you have to wait might be worth a try in the meantime.

Hope that helps and good luck xx

Lolalules profile image
Lolalules in reply toPurple276

Thanks so much - I have my 3D scan in a few weeks so good to know this may pick it up too. Sorry to hear you’ve been through it too - and great tip on being persistent! That’s what I’m having to do to speak with the consultant after the HSG, they keep telling me to wait til end of Aug which is crazy long! Also great shout on acupuncturist, ive had that as part of physio for a back issue I had and it worked quite well so may be worth a try! X

Purple276 profile image
Purple276 in reply toLolalules

No worries at all and glad you've got the 3d scan booked. I never like to cause a fuss and work in the public sector myself but I've definitely learnt through this process you can be your own advocate and be persistent whilst still being polite! Good luck and hope you can get a cancellation or get them to move the results sooner xx

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