I am having a rubbish day and just need to vent! I’m having my HSG on Tuesday and me being me, I’ve so worried about it! Im so worried about the outcome, what if my tubes are blocked? What’s the next steps? What if they fob me off like they have done for so long? What if they don’t allow me to have surgery which has also been refused once before or if they don’t set me up a treatment plan?
I’m 23 with two chocolate cysts. One on each ovary. One is 2cm and one is just under 3cm. I haven’t wanted to go on the pill because me and my husband are trying for a baby so that wasn’t an option, and surgery was not an option as they refused as the cysts are not too big and shouldn’t be affecting fertility. I had a scan last week to see if they had grown and they were still the same size as above and have been for the last 7 months, she said they hadn’t grown. Also I forgot to mention my husband has issues with his sperm, sperm count isn’t as high as they would like an morphology is 2%.
So apart from the HSG on Tuesday and my husband sperm analysis on Wednesday, we have to see the fertility doctor on 31st October. I’m also worried if we need IVF or ICSI is it?? (I’m still very very new lol) we won’t be accepted as we would not be able to fund it ourselves as we don’t have that kind of money. Everything is running through my brain today and I just need some positivity or anyone to share there stories with me!!?
Hope you all have a lovely weekend xx
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ChloeL934
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Hi ChloeLoveridge0910, can you ask your doctor to drain both cysts. I got severe endometriosis. I had surgery last year and my doctor drained the endometrioma. Good luck.xx
As far as I know, unless the cyst is somewhat inflamed it cannot be drained as such. Her chocolate cysts didn't grow a bit which suggest there's either no or very slow growth.... no clinic would really tread with spooking it unless there's real evidence of its interference in the patient's life. Considering she'd been dismissed of surgery they still don't have reason to get into any process with the cyst.
My doctor did mention that unless they were large or grew they wouldn’t like to do surgery unless they were 5cm or bigger? Maybe a different case for everybody. But as they haven’t grown over the last 7 months I’m assuming the need for surgery isn’t immediate.
Yes, I assumed the same from your story... even if there's a surgery to happen it's not gonna happen any soon. Just out of curiosity, do you have symptoms or inconvenience? Haven't you been on medications to deal with the cyst over this 7 months? I know someone who've had chocolate cysts, I don't remember the measure though but it was very small and she was on medications after the while the cyst diminished.
I’ve had very painful and heavy periods for as long as I can remember, but I always have spotting in between periods, although there is very rare. Once every few months maybe? Been hospitalised due to abdo pain, painful intercourse but this is also rare I more so get cramp like pains after intercourse, usually fade away after a few hours. I haven’t been given any medication for the cysts, just lots of different pain relief to try, my GP said if I wasn’t willing to go on the pill there was very little they could do.
Oh, yes these inconveniences you mentioned are frequent with cysts. It's really irksome that it does everything that makes your life difficult and painful and yet it's too small to be surgically removed. I don't know if pills are the only way but yes they are a treatment method. However, as far as I've read new measures are eliminating the use of pills. In fact a combination of pill and pain killers are precribed in most cases to shrink the cyst. I mean I understand people dread about going on pills owing to the numerous complication it might cause... even to the extent to affect pregnancy... but in your case your very cure is the pill. So, I really don't know why you're so reluctant to even give it a try. Considering the cysts are small it will only be matter of few weeks. Definitely, as long as you're ovulating you might get pregnant naturally but the cyst may interfare even in gestation... so you'll have to do something about it. I wish you find your way to deal with this demon of a cyst... good Luck!
Oh okay. Well, then it's really risky or at least increases the risks of DVT. I didn't know this effect to be honest, I just checked after you mentioned and it does increase the chance of DVT by 3-4 times. With a family history of DVT, the risk is many times more. Sadly, there are ways to deal will contraception without progesterone, like minipill but then that's of no use to your case. I hope you find a suitable way to deal with the chocolate cysts and end it's interference in your fertility journey. Wish you all the luck in the world!
Hi chloeloveridge0918.
Sorry to hear you are having a difficult day, this journey is very tough.
I don’t have endo cysts but I do have endometriosis which has made getting pregnant very difficult. For us it was the only issue ( for which I am thankful) I’m currently 5 weeks pregnant after my latest surgery ( by an endo specialist) very early days ( we had a chemical pregnancy last year) but I hope that can give you some hope that even after trying for 7 years it can happen never give up hope ❤️
Have you had a laparoscopy to check/treat endometriosis? If you have endo cysts you could endo else where & should be checked.
It is possible to have your tubes checked via laparoscopy ( they could do that as well as check/treat endometriosis) If you can’t face the HSG.
My advice is to take this process one step at a time otherwise it can feel overwhelming. It’s always helpful to make a back up plan 🙂
Hope it all goes well & you feel better once you have a plan. I think it’s worse not knowing once you know what is what you will know what you dealing with.
Good luck with HSG hope it can provide you with some reassurance xoxo
Thank you so much for replying! Congratulations and I wish you all the very best in you’re pregnancy, it does give me hope reading positivite stories. I saw a general gyne last year as I had been rushed to hospital with terrible pain, I was given morphine and kept in over night, next morning had internal scan which showed two small cysts, which haven’t grown since last year thankfully.
When I spoke to the gyne about the operation she said it was a big step for someone so young, at this point we wasn’t under the fertility doctor but my fertility doctor did mention the surgery if the cysts had grown, so now I know they haven’t I’m not too sure if she will, but I am definanlty going to mention it to the fertility doctor.
I am going to go ahead with the HSG as the fertility doctor wanted this by the next appointment. Where I’ve been fobbed off so many times I think it’s got the point now where I’m not going to take any crap! Sorry for the language. So I’m making a list of everything I want to talk about and mention!!
I think you are right I will feel better once I know and we have a treatment plan. Your little message has cheered me up.
Congratulation, it's a great news really! I've seen you around in the forum for long but never had a chance to interact so far. Hmm I usually add a little directives with BFP congratulations. Take good care on yourself and no matter what do not stress. Also, since I've seen you around for long it obvious you have every reason to dwell on the odds from the past... don't do that. I've read it in hundreads of blogs and articles that stress both physical and mental isn't good for the baby neither it's healthy for the mother. So, throw away the worries and just chillax. I hope you don't mind. Just as aspiring mother trying to find hope and hapiness for all the BFP she lands on.
I don't have a positive story to share... but would still love to pass on some optimism.
Though the struggles had been different I can totally relate to what you might be feeling. Yes, chocolate cysts may or may not interfere with your conceiving process... it's hard to have sure yes or no to it. Also, the fact that your SO has a 2% morphology gives the clinic another reason that could contribute to the reason of the failed TTC attempts. Sometimes when there's more than one reason pointing to be the probable cause of infertility they try to deal with the easier to treat one first. In your case which in the morphology. I don't think there will be any surgery coming up to tend your chocolate cyst so you'll have to work on dealing with the SA issue first. I think if at all the SA is any responsible maybe an IUI won't be a bad idea. Since you're just 23 and in a comparatively better time of your reproductive years ... you can invest some time before the obviously assisted fertility. I think you can tell for sure that the chocolate cyst does interfere with your fertility and can provide enough medical evidence to demand a surgery for its removal. For now just head on to the consultation and see what the Dr suggests. I can understand your worries but it's less likely that the Doc will ask you for IVF right away.
So sorry to hear you’re struggling. Easier said than done, but take 1 day at a time. Have the HSG and see what comes back from that- fingers crossed your tubes are clear though xx
Exactly, that’s what I’m doing. Taking each day as it comes. I have great support from my mum and husband and also all the ladies advice on here which is great. I had the HSG but don’t get results until I see consultant end of the month so fingers crossed. Thank you xx
At your age they might suggest iui before ivf, depending on whether hubbie’s sperm is suitable, so you might want to read up on that before your appointment?
If blood tests have indicated you are ovulating then that’s probably why they don’t think your cysts are causing a problem; they’ll usually assume the most obvious problem is the likely cause which in this case is your hubbie’s sperm I guess.
If your tubes turn out to be blocked, just state that you want an exploratory laparoscopy. If you sound confident enough then you should be listened to and not fobbed off.
Hey I have heard of that before. Maybe I will do some more reading up. Hubbies sperm isn’t too great, low count and morphology? So it’s being tested again and we get results at the end of the month also. I will also ask for exploratory lap depending on the results. I have blood tests a while ago and doctor said everything was fine and I was ovulating xx
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