Living with epilepsy
retzy12 days ago
Hey Im rezy
Living with epilepsy is like having a tattoo that we have to embrace. Always be positive because anxiety and negative thoughts ca...
2 Replies2 Likes
Is a better life possible?
JAY6813 days ago
My name is Johan and I have a brother with epilepsy. He was kind of diagnosed age 7. He turned 31 this year.
Why I’m writing you is beca...
Sasekile19 days ago
My name is Beauty. I am 26 years old. I live with my nephew who is 16 years old. late last year, he started experiencing involuntary jerking...
Walk With The Baron For Brain Injury
BaronCa month ago
I have an idea to put to you that I've been mulling over for a while.
I'm thinking of putting together an 'event' one day next year.
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Question re treatment
SusanStuart2 months ago
i have been diagnosed with temporal lobe epilepsy in 1994, im currently not on any meds. with the epilepsy i have the symptoms of d...
4 Replies1 Like
Unsure what was triggering light jerks during the day...
BoytjieD2 months ago
I'm new here. I was diagnosed with epilepsy age 11, after light jerks of my arms started at a very young age and caused serious worries to m...
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retzy2 months ago
So I was diagnosed with epilepsy from a young age. I hated having epilepsy at a young age because i felt different as i usually had my seizu...
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LitchiLee3 months ago
Hi, diagnosed with TLE about 8 to 10 years ago (abnormal EEG reading). Did not believe the diagnosis and after a 2nd opinion went off my me...
Im losing my mind
Anotida4 months ago
I have a beautiful daughter diagnosed with epilepsy the problem is that am trying t enrol her t a school but they dismissed her just becoz s...
Unknown fits ..??
swarna-254 months ago
My son who is 15 was born with trisomy 21was a happy and lovely child, Untill his age 14. I had to leave him with a care taker for 6months d...
Rykie5 months ago
Good day, I have Temporal Lobe epilepsy which has been under control for a long time. I drink (I dont have the jerking etc. But is as if I'm...
Mavish_265 months ago
Hello all, am Avelile known epileptic since 2006. But am seizure free now since Febr 2016.
1 Reply1 Like
90 days then smack
DebsStansfield6 months ago
On Wednesday I had an attack.. I was 3 months 'seizure free' before it happened.. It was again a clonic-tonic seizure and I bit my tongue (w...
Hello all.. I haven't had epilepsy for that long.. In fact my first seizure happened close to the end of November (2016).. So I'm still in t...
GerryGG6 months ago
Hi. I'm in Ireland and I have friends and work colleagues in South Africa. Hoping to visit soon. Gerry.
Effectiveness of AEDs
NimiB6 months ago
My younger sister has focal epilepsy and in order to try and understand more about epilepsy, I have made it the topic of my Grade 12 Life Sc...
2 Replies1 Like
Effectiveness of the Ketogenic Diet as a form of Treatment for Epilepsy
What I have experienced
Herm7 months ago
I was taken up at Constantiaberg Medi Clinic on the 15th Feb 2017 and was actually today the 27 March said that I can go home again I wa...
Louisedj7 months ago
Hi all, in October last year I was diagnosed with Grade 2 brain cancer. I had the necessary operation done to remove most of it but due to t...
Sponsoring an epileptic to immigrate to Australia
LisaGina7 months ago
Hello - has anyone heard of an instance of a sibling sponsoring their epileptic brother/sister to live in Australia with them?
LisaGina8 months ago
My older sister Gina has had epilepsy since she was three or four years old. She still lives at home with Mom and Dad, but I have moved to A...
Help, I'm scared
Mainda8 months ago
I'm new here. Had my first Grand Mal siesure a few weeks ago. I'm suffering from deep depression at the moment and not quite sure how to han...
Support in Klerksdorp
SamanthaBrink10 months ago
My brother has had epilepsy since he was 10 and it is getting progressively worse. He is 33 now and his memory is failing and he is having r...
grow-1a year ago
I'm a 41year old female living with epilepsy from age 2. It has not deterred me from achieving my goals and achievements
I am only having ...
Living life to the fullest
NanaMaya year ago
Hello Group, thank you for the encouragement since I joined in February this year, I have been living my life to the fully, but then this mo...
Support Group Northern Cape or Free State
Zay1983a year ago
Hi my 9 year old son has recently been diagnosed with epilepsy. Would like to join a support group in Kimberley or Bloemfontein if nothing i...
Epileptic single mom 2 kids wanting support group and friends
DebzMa year ago
Single mom 2 kids epileptic lives in cape town
Looking for epilepsy support groups in Cape Town
A_dam122 years ago
I am a parent of a 2 year old boy who has recently been diagnosed with Complex Focal seizures. my wife and I would like to join a su...
No help from epilepsy association for something so needed
Chetty2 years ago
Hello, can you please tell me how is it when you call the epilepsy association itself, and explain you have epilepsy and ask for help to fin...
Mpasi2 years ago
My epileptic daughter is now 19 turning 20 in September. she was attending special school in Bloemfontein. She is a down syndrome child. ...
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