Rykie24 days ago
Good day, I have Temporal Lobe epilepsy which has been under control for a long time. I drink (I dont have the jerking etc. But is as if I'm...
Mavish_26a month ago
Hello all, am Avelile known epileptic since 2006. But am seizure free now since Febr 2016.
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90 days then smack
DebsStansfield2 months ago
On Wednesday I had an attack.. I was 3 months 'seizure free' before it happened.. It was again a clonic-tonic seizure and I bit my tongue (w...
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Hello all.. I haven't had epilepsy for that long.. In fact my first seizure happened close to the end of November (2016).. So I'm still in t...
GerryGG2 months ago
Hi. I'm in Ireland and I have friends and work colleagues in South Africa. Hoping to visit soon. Gerry.
Effectiveness of AEDs
NimiB2 months ago
My younger sister has focal epilepsy and in order to try and understand more about epilepsy, I have made it the topic of my Grade 12 Life Sc...
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Effectiveness of the Ketogenic Diet as a form of Treatment for Epilepsy
What I have experienced
Herm3 months ago
I was taken up at Constantiaberg Medi Clinic on the 15th Feb 2017 and was actually today the 27 March said that I can go home again I wa...
Louisedj3 months ago
Hi all, in October last year I was diagnosed with Grade 2 brain cancer. I had the necessary operation done to remove most of it but due to t...
Sponsoring an epileptic to immigrate to Australia
LisaGina4 months ago
Hello - has anyone heard of an instance of a sibling sponsoring their epileptic brother/sister to live in Australia with them?
My older sister Gina has had epilepsy since she was three or four years old. She still lives at home with Mom and Dad, but I have moved to A...
Help, I'm scared
Mainda4 months ago
I'm new here. Had my first Grand Mal siesure a few weeks ago. I'm suffering from deep depression at the moment and not quite sure how to han...
Support in Klerksdorp
SamanthaBrink6 months ago
My brother has had epilepsy since he was 10 and it is getting progressively worse. He is 33 now and his memory is failing and he is having r...
grow-17 months ago
I'm a 41year old female living with epilepsy from age 2. It has not deterred me from achieving my goals and achievements
I am only having ...
1 Reply1 Like
Living life to the fullest
NanaMaya year ago
Hello Group, thank you for the encouragement since I joined in February this year, I have been living my life to the fully, but then this mo...
Support Group Northern Cape or Free State
Zay1983a year ago
Hi my 9 year old son has recently been diagnosed with epilepsy. Would like to join a support group in Kimberley or Bloemfontein if nothing i...
Epileptic single mom 2 kids wanting support group and friends
DebzMa year ago
Single mom 2 kids epileptic lives in cape town
Looking for epilepsy support groups in Cape Town
A_dam12a year ago
I am a parent of a 2 year old boy who has recently been diagnosed with Complex Focal seizures. my wife and I would like to join a su...
No help from epilepsy association for something so needed
Chettya year ago
Hello, can you please tell me how is it when you call the epilepsy association itself, and explain you have epilepsy and ask for help to fin...
Mpasia year ago
My epileptic daughter is now 19 turning 20 in September. she was attending special school in Bloemfontein. She is a down syndrome child. ...
Have epilepsy and need help for a residence.
Hello, I am living in Cape Town at the moment and looking for a residence myself as I have epilepsy and my parents are late and I cannot liv...
Ockerta year ago
Been diagnosed with Epilepsy basically 2 years ago. I am 38.
after lots of tests and scary MRI's and what-nots, the neurologist prescribed...
binkiehba year ago
Hi everyone I need help, my daughter is 17yrs diagnosed with epilepsy from September 2015 because she had a seizure at school, she is in mat...
What to do
AlbertCPT2 years ago
My cousin just moved in with me, he suffers from epilepsy (18 years old). Since he moved in with me, he had one seizure. What should ...
Epilepsy Research Task
NimiB2 years ago
My younger sister has focal epilepsy and in order to try and understand more about epilepsy, I have made it the topic of my Matric Life Scie...
Young Epilepsy Botswana
ithabeleng2 years ago
We successfully launched young epilepsy society on the 26th March here in Botswana,we will soon have a nation that understand Epilepsy.
FACEBOOK & TWITTER
Hidden2 years ago
To All Members,
I have had epilepsy for 41 years now and am 57 years of age!
If anyone wants to make contact with me through Facebook or Twit...
HAPPY CHRISTMAS AND ALL THE BEST FOR 2015!
Hidden3 years ago
Wishing you all a wonderful Christmas and all the best for 2015! May it be a great year ahead for all of us with epilepsy, and a better year...
Ilana3 years ago
I'm told when my CSF shunts/ETV quit and I'm in acute shunt/ETV failure I loose consciousness & T/Cs start, why does T/Cs happen when my shu...
Brain Ventricles & Brain Lobes - What's the Connection to T/Cs & High CSF
How are the ventricles linked to the 4 lobes of the brain & where is each lobe located in relation to the ventricles? Does the lobes &/or ve...
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