I've been recently diagnosed with endo and adhesions, they said they couldn't remove any at my lap as was too extensive, it's all over my ovaries and they're stuck to something, can't remember what :/ lol, it's all over pelvis in various places, and on womb, bladder and bowel and stuck them together, I'm now on the list for a full hysterectomy and whatever else might need doing.
I'm fine with this to a point, but there are doubts in my mind, it's not that I want my womb or ovaries anymore, im 41, I have children so all that side of it fine but before my lap I was in a good routine with managing my pain. I did have a mirena in so that solved heavy bleeding issues, which enabled me to walk daily, and I attended a couple of aqua sessions and a couple of Zumba sessions. Some of this exercise caused me pain, but it never made me feel any worse, as that pain was there anyway, but i still strongly believe that exercise has helped keep me mobile as now with lack of exercise i feel much more seized up. I was managing about 10 hrs work per week too. So all in all, with the help of pain killers too, I feel I was coping/managing with the pain of endo, even though I never knew it was endo for sure.
Now I'm diagnosed, all that's been suggested is the full hysterectomy or six months hormone treatment. I've already refused hormone treatment as I am scared of side effects, even the mirena caused me hair thinning, something which really upsets me. But yes, I'm on the waiting list for the hyster, and everyone says just get it done asap, but to me I'm not sure if I want to go through this op, and just hope they manage to remove most of the endo, And maybe i don't want to go through menopause yet, but all I keep being told is get it done sooner rather later, and don't worry about menopause symptoms you might not have any, and you might not need any hrt blah blah. Ok, it's all ifs and buts, I may not have any real menopause symptoms, and I may not need hrt, they could remove all the endo, and that could be the end of endo, it could also be the exact opposite of all that, but again it's all ifs and buts.
My point is am I wrong to just wait and see, I've struggled quite a bit after the lap, I assumed after a week or two I'd be feeling back to normal, but I've had much more pain, my doctor said it is probably where they've messed, and not removed any endo and probably caused more scar tissue anyway, so this makes sense, but I'm hopeful this will improve with time, but why can't I just wait and see how it goes, I managed before yes I was in pain, and sometimes the pain is too much but I had a life, kind of, at the moment I feel I'm in a bit of limbo, just trying to get back to normal to then go straight into another op, I can't get back to a proper routine yet with work as they're just waiting for me to be off again, for even longer next op.
Sorry it ended up being a long one again, but all this is just going through my mind constantly, I've been so emotional since the lap, and am constantly on the verge of tears, but trying to hold it together so I don't upset my family - hope everyone is doing ok xx