I'm Ami, my birthday is 04/05/93. I'm on the implant - have been since I was 16 - I don't get any bleeding whatsoever. (I started my periods at 11 and they were SO heavy and painful and getting the implant five years later was bliss! Still had pain but nothing compared to before.) I'm not sure what info is relevant.
I've had all the common symptoms of Endo for roughly two years now (shan't list them all as you've all read and experience them hundreds of times). I've been rushed into hospital two or three times with the 'appendicitis' misdiagnosis etc. Docs at the hospital were freaked out when I told them I had shooting pains up and down my right leg. Been told I could have IBS but the woman said there was nothing she could do to diagnose me properly so it was just a 'might'. Been told I had an eptopic pregnancy even though I'm on the implant and the test was negative. I've had the emergency docs out more times than I can count. I've had a stupid amount of blood tests done, I've had an ultrasound (external and internal). I've had a full STI check - nothing. I've been treated for Pelvic Inflammatory Disease (antibiotics) but they said as there was no improvement of my symptoms I didn't have PID. My Mother has a wonky knee cap and I have a lot of pain in my knee's if they're bent for more than a couple of mins. I get a horrible aching in my right shoulder and right side of my neck (sometimes accompanied by shooting pains). I get I have had diclofenac, tramadol, diazepam, codeine etc etc. The only time the pain was almost gone was on morphine in hospital. The pain used to be in just my right side but recently it's started up a bit in my left too. I always have a constant ache which I've just had to learn to live with and then it flairs up real bad sometimes, other times it's just sharp shooting on top of the constant ache. (Right now both sides are quite painful and I've got work in just over an hour.)
I didn't know about Endo until the second time I was in the back of an ambulance and the paramedic was asking me questions and then he had a eureka moment and started talking about Endo and common symptoms etc - his girlfriend had it and I feel so lucky that he was my paramedic that night.
To cut a long story short, my Doctor (who is amazing) is convinced I have Endo and my appointment to see the Gyne is 23rd May - which will have been a fifteen week wait by the time I get there. My Doctor is pretty sure that the Gyne will refer me for a lap and the hospital have told me it will be about a six week wait from referral to op day.
I've been registered to this site for a while now and put off posting as I haven't got a diagnosis and didn't want any of you to think I'm wasting your time.
This is already much longer than I intended so if you've got this far thank-you so much.
I'm just anxious and nervous about it all.
I'm scared of finding out whether or not I've got Endo. I'm scared that I might have it. I'm also scared of if I don't have it, then what the heck is causing me all this awful agony?! I'm also scared of having an op as I don't want to take too much time off work.
I've been a vegetarian all my life. I'm on a low income so I can't eat really good food. I'm worried that I may have made things worse by my diet as I've seen and read things about the Endo diet.
I'm sick of the pain, the moodswings and everything in between. I just want to know what's wrong and I want it to stop!
I'm sorry if anyone feels offended by me posting.