I've had two laps, in the first one they said I had mild endo and lasered it off (dec 2009). There was definitely nothing mild about the pain!! Two years later I had my second lap (sept 2011) where they said they found nothing but a few adhesions and a sticky ovary (whatever that is) so they didn't think my pain was gynea!! I know this is complete trash because the pain I have gets worse with my period and ovulation....doesn't take a rocket scientist! They were adamant it was IBS, then it was in my head, currently I'm being seen by a physio for my hypermobility syndrome, she seems to think that doing my pelvic floor will help but the pain is in my tummy not my.....lady bits! I have seen a gynea consultant in the last 6 months and at the time I had been put on norethisterone (very high dose progesterone) to stop my bleeding. I took this for 9 months and it worked, my pain levels were manageable and I felt like I had my life back.....the gynea agreed that because this worked that my problem was gynea and he was happy for me to stay on it.
HOWEVER!!!! I should never have been put on it i the first place as I've now found out that if you're hypermobile you really shouldn't take progesterone even in small doses as it makes me even more bendy. I've had to dislocate both hips and one knee cap before anyone realised it was the progesterone I've now been told to take paracetamol constantly.....erm *cough* what??? paracetamol??? that stuff normal people take for a mild headache??? what, on it's own??? I may as well not be bothering with them at all, they are not even touching the pain that has returned!! I've had no mention of going back to the gynea, just "well we can't do hormonal treatment so just take pain killers" from my gp. I wanna scream at the world......"somebody help me, I cannot send my life in my bath!!!" Rant over, sorry. Can anyone give me some advice please? or even just a hug, I'm writing this in tears,sat in the bath after being woken up at 6 with more pain.....I can see no light at the end of the tunnel any more....in fact there is no tunnel I'm digging through a brick wall with a tesco value teaspoon