Just joined and thought i would share my wonderful < touch of sarcasm > experiences of Endometriosis with you all..
I am now 40 and after collapsing at work with bad stomach cramps when I was 26 I was given my first laparoscopy and diagnosed with Endo. I was given monthly injections (in the stomach) which gave menopause-like symptoms (great, no periods = no pain) but after @18months and lots of hot sweats (great in the winter not so much in the summer), mood swings and extra weight I couldn't hack it.
I decided to test the waters and gave my body a break and was ok for @6months (ibuprofen + hot water bottle) but then the endo flared up again. It was back! After my 2nd laparoscopy and clean out I decided to continually take the pill which was great (no periods = no pain). I did this for 6 years but knew it couldn't go on as i was getting too old
So, I had another break and, again, after @6months (more ibuprofen + 2 hot water bottles) it was back with a vengeance. My gyno suggested that as most of it was around my left ovary to have the ovary removed. So i did. Man it killed but surely it would work?. No. I was fine for @12months but then the pain started again.. not being able to stand up or sit down, like having a red hot poker up your jacksy, feeling like you're carrying 10 house bricks in your womb... you know the score.
So my gyno tried me on Cerazette. BIG mistake. I was fine the first couple of months - the odd twinge here and there, bearable - but the third month!!! i'd been bleeding for 15 days constant (my previous record was 11 days and that was in my teens) when i went to my GP and he wanted to give me tablets to stop the bleeding but still take Cerazette! No thank you. So i just stopped taking them. That was 6 months ago.
I saw my gyno last week and had the Mirena coil fitted. Ouch. So i am now going to give this a try. But what happens after the 5 years is up? Will it work for me? If not, what next? I'm already worried about the side effects (my leg's gone numb) and it's only been a week! The thought of a hysterectomy is not a welcome one but to know the pain will stop (though this isn't guaranteed) it is becoming tempting...
And to think I only logged on to check out my symptoms for side effects and i've ended up writing war and peace. If my babbling helps at least one of you then i'm glad. Because it's made me feel better knowing that i'm not alone on this one.
Take care y'all x