Anybody get back and hip pain with there endometriosis?

[Bluebird87]

[aabb]

Yes I do Bluebird. I was at the doc last week about it and she is sending me to physio then if that doesn't work sending me for an xray. She doesn't think it's my endo but after reading comments from others it seems there are a lot of woman with pain in their hips etc. I also have fibromyalgia so it could be that, not sure yet. Take care.

xxx

[Bluebird87 in reply to aabb]

Can't see how doctors can say that? There not the ones with the condition. Talking from my experience I know myself it's related to endo and if I'm honest my pain had got worse since my lap unfortunately and it's costing me my job as I'm on a final written warning :-(. I do hope they sort it out for you lovely. Xxx

[Bluebird87 in reply to aabb]

They gave injections thinking may be spine problem but it isn't is my endo injections didn't do nothing. I find exercise makes it worse and I can't Walk to long.I work full time and its a struggle. I do hope they sorry things for u lovely xx

[doubleL]

Hi yes this is where most of my pain is around my right hip and lower back, just had adhesions removed from near appendix scar on right hand side so im hoping this was causing the majority of the pain xx

[Hope22]

Although I havent been diagnosed yet, my hips are constantly sore to some degree or another. I feel a similar tenderness in the bottom of my back and even my bum sometimes too! A light walk often helps, but not so long that it wears me out or involves carrying anything too heavy as that only adds to my back pain. I can certainly sympathise

[worth71]

Hi yes I have constant lower left front and back pain, and as it becomes more intense it is across all the front and back, sometimes I can feel it on the top of my hip bone, not sure if that's the endo or if maybe it's because I perhaps stand/sit differently to allow for the pain - I find exercise is the best thing, it sounds ridiculous but once upon a time I would just rest up but in the last 12 months I've lost a lot of weight and I did it by eating healthily but by walking lots and aquafit, and Zumba. Don't get me wrong I still feel my pain whilst exercising and there are days that I just can't but generally walking or exercise makes things no worse and usually better for a few hours - I walk 3-4 miles per day, this past week I haven't been able to as had my lap last week but got out today for the first time and enjoyed it so much even tho it was a short one xx

[Cloudyrain]

Its quite common for endo girls to ger bad hip pain. My hips hurt really bad before and during my period, and just mild aches at other times. It's to do with endo pushing on nerves and transferring pain. I have found that keeping the hips moving helps reduce the pain x

[Bluebird87 in reply to Cloudyrain]

See I'm in a permanent pain I'm on fentanyl patches and morphine and still don't take all pain away.

I find more walkingand moving I do the worse it gets.

Im sick of it cos it's ruling my life, I stay positive but when u can't do things I used to do its a knock back x

[Hidden]

Hi, I get terrible back pains, on my lower back usually on my left side. It feels bruised and sometimes Its so stiff I can't pick things up from the floor or even bend slightly without wincing. I get hip pain too every now and then but luckily it is not as strong as it was before I had my lap last year (got endo burned away, and adhesions divided). Thankfully for me its not all the time, my back is more often, maybe 2-3 days over the week and my hips is actually only when I'm about to get my period. I try to do some pilates when I can bear it or when its too bad I just use a hot water bottle. I hope you feel better soon. xoxo

[Bluebird87 in reply to Hidden]

The pain is permanent with myself im on fentanyl patches and morphine but doesn't take full pain away. Walking for long I can't no longer do nor standing, I feel like an old lady. I work in theatres for nhs and u can imagine its hard going. People don't seem to understand except ppl like yourself.

I've had 2 laps now and both times things gotten worse. They looking at cutting out the endo next time. I do hope things improve for us both hun xx

[angiechick78]

Hi yes like most of the replies to you, I too suffer with back pain and over the past few months the hip pain has become worse. It's so bad at times i struggle to walk I really hope they get you sorted

I'm back at my consultant in January and hoping they can give me something stronger for the pain

[Bluebird87 in reply to angiechick78]

Oh hun is terrible isn't it, I can't go out much ie walk around shops for too long in doubled over so at times use wheelchair at shop.

Im currently doing iui fertility and boy its hard and the pain is awful usual. If this don't work then I have 1 chance with ivf. I've had 2 laps now and both times it makes my endo worse, it spread within 6 months they found. X

[karrijon]

yes my worst pain is lower left back and left hip. I was told it was my spine, sent for physio, MRI etc. It's all definitely related to the endo. Bad days I can't walk at all.

[Bluebird87 in reply to karrijon]

My back and hip pain is that bad I have to use wheelchair in shops at times. Work is a struggle but I'm fighting to not loose my job.

I really sympathise with you x

[AlleyKatz]

as my uterus is stuck to front of stomach and lower back of stomach, im told this is why iv bad back ache, not sure if this is your case, iv been reading endo for dummies which i got from amazon second hand for £1.50 .. its good this does help you realise your not crazy and the pains your feeling do exist , makes me angry too as docs must know about this condition . iv had fibromyalia for yrs had every test under sun except for it. i knew i had something,!!! with me if i dont keep fit every week, i start to seize up and the depression cloud comes over the tiredness and then its a bugger to get back into it... im on antidepression tabs which have worked a low dose and iv also been diagonosed with aneamia and have found a great supplement called spa tone from Boots. which gets right into the system and you asborb most of it ,not like the cheap tabs from the docs which you only asborb 40% , i always thought i was a mina depressive, i didnt realise low iron gave you the blues and comes hand in hand with this condition realising the tiredness was from aneamia and taking medication regulary has helped but i still need the gym.. dunno what im gonna do as i get older xxx

[Bluebird87 in reply to AlleyKatz]

Ah right, no as far as I know it's not stuck to them.

I'm sure to see the pain team 6th Feb.

Oh I will check the book out sounds useful.

I understand how u feel its awful and it feels like it gets in the way of life in more ways then one. We need to try to focus and stay positive even thou like myself I find it hard.

I have uploaded another question about meeting in the South West because there is no support group and then ppl can tell there stories and all give support and knowledge of there experiences.

Are you in South West area? X

[karrijon in reply to Bluebird87]

Where about are you in the south west? I am in south Devon.