So fed up...

[worth71]

my last gynae appointment was 23 july, had pre-op done that day as consultant agreed to take out mirena and do endometrial ablation, have been for a couple of scans since that app, but nobody said how long it could be or how they would get in contact so i've just phoned them to make sure i am on the list, and she said as long as it's done within 18 weeks!! i know thats standard waiting times but i was hoping in the next few weeks, and it's probably going to fall on the wkend that we've actually dared to plan to go away to london (harry potter studio tour) we don't plan anything, we dont go or do anything really but we had to plan this and hope that i would be ok, and if not for then the procedure date will fall near to xmas - i know it's trivial things but i guess i'm just feeling real fed up again today, have felt like absolute pants all week as am in pain as i can actually feel my womb/pelvis building up ready for my period, which started yesterday, the last one only ended on the 3rd august, so although that's almost 2 weeks between bleeding, i pretty much feel like i'm on my period all the time with all the pain.

i just feel that i would like to see one consultant who actually looks through all my ultrasounds, my mri, my hysteroscopy and maybe try to piece together all those results with my symptoms and actually work out whats wrong - instead the last consultant just looked at gp's referal for ablation and removal of mirena. they have no idea what its like to live like this, i've had to cut my working hours from full time to 12 hours a week, this week i ended up doing full days as trying to get clients done as i'm having two weeks hols (not going anywhere but just time out) so i've worked 9-6 for four days and its crippled me, how pathetic that i can't even work full normal days.

sorry just needed a little rant xxx

[minime1]

Oh honey, all I can do is send you big hugs I know too well of the waiting game I went for my op in January ended up having to be resuscitated on the table without even starting the op they can't find out what the severe reaction was too so still waiting everyday feeling worse than before, but hold on to there must be light at the end of this endo tunnel. We will all stick together and I hope you feel better soon x x live from me and my best friend penny painkillers

[Hidden]

I know it's easier said than done, but keep your chin up hon... I have a thing with Penny Painkillers too at the moment.

Big internet hugs coming your way.

[LittleMissManx Moderator]

Hi worth71, there's no need to apologise for letting off steam with your message.

We have all endured being on hospital waiting lists and sometimes it seems as though your name will never make it to the top. I guess the consultants secretary was trying to make you feel more positive when she said you would have your op in 18 weeks or less, even though it wasnt the amswer you were hoping for.

Lets hope you get called in sooner than the 18 weekd deadline and that the date doesn't clash with your fab-sounding HP studio tour

Hope you have some good news soon, x

[uglyduckling]

Like every one else above I know it is crap and that our hospitals/NHS and private care feels like no one cares about us.

Keep your chin up and if you need to talk to or to vent anything you can always chat to me.

Kind Regards

Emma-Jane

[worth71]

Thanks guys, i did have a good few days after i posted this but am feeling pants at the mo, just been to the gym but had to stop as had almighty pains in the left side of pelvis and through my bowel, its the first time i've ever had to stop exercising as usually exercise will help the pain i couldn't even walk properly which is really unsual - i've made an app with my gp for next week, i don't think i'm happy with going for the ablation as it is purely for stopping the bleeding but i still get all the pain even when i'm not bleeding, the pain i feel is like how i used to feel when i was bleeding really heavy and flooding through, contraction like, but i only bleed for 2 weeks out of 4 its manageable bleeding because of the mirena, but i feel the heavy pains for at least 3 out of 4 wks - seeing a different gp as mine is off sick but sometimes fresh eyes can help xxx