I need to let off some steam ladies. I was diagnosed in Nov 2014 after having a laparoscopy and the endometriosis excised. Since then I feel I've had a turbulent journey. My pain came back quickly so I was put on the combined pill for three months at a time to try to control it more. When I was first diagnosed I was strangely ecstatic. The pain I'd had for years was real, not a figment of my imagination and I finally had some answers. Fast forward 14 months and I feel like I am in a constant battle for control. Some days I win, some days the endometriosis does. The random pains, the familiar pains, aches in my back, the bloating and the most awful fatigue. It's really getting to me at times. My husband has been amazing and sees the state I am in and has been my rock, but I almost feel let down by most of the other people around me. My best friend dismissed me the last time I spoke to her about how low I felt by saying 'well you're on the pill now' and promptly changed the subject, and my mum even told me a fortnight ago that all I really need is a 'positive mental attitude'! Get that girls. Never mind the pills or the surgery, its all in our minds! I just feel right now that I don't think anyone understands just how wearing this is, and I challenge anyone to remain positive when you are curled up in agony.I try my best to be as positive as I can but I'm only human and feel quite helpless and alone at times. Especially when I get different than usual pains, I don't know what's worth worrying about and what isn't anymore!
If anyone has any tips on other things to do alongside the pill please do let me know. I'm not sure at what point I go back to the doctors to ask for another referral but I'm not sure how much longer I can carry on like this for!
Thanks for listening