My consultant in September told me to lose 10kg to be listed for surgery I lost the weight he told me to lose. He then in January told me I need to lose another 8kg. I am struggling to lose the rest of the weight he's asked. I'm being reviewed again in April. My endo symptoms are getting worse and I am at the point where I don't know what to do as the week of my period I can't leave my bed let alone think about doing exercise! Do you think he will list me for surgery, keep me under review or will they discharge me back to my GP and until I've lost the weight. I waited 18 months on the waiting list previously to see a consultant so don't want to have to go through that again.
Any advice is welcomed
Written by
Dolphin1045
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I suspect he didn't think you would lose the first 10kg. So well done on that.
Unfortunately no one can tell you as it depends on the BMI criteria for the operation. There are better out comes if your BMI is under 30.
Also be aware that due to endo bloating you could have up two weeks every cycle where you don't seem to be losing weight. Most women who don't have a large amount of weight to lose have about a week.
I would put in writing to him that he had undertaken to put you in the list on X date when you had the first consult with the proviso that you lost 10kg. Note that at the time your weight was X at that date.
On the second consult that you attended you expected that you would, having lost the weight, and now being X that this would enable you to enter the list as previously agreed. He,at that consult, required you to lose a further 8kg before you could be entered on the list.
Ask him to clarify is this ; -
1) Because the BMI cutoff has since been altered ?
or
2) You were given the wrong information at the first consultation, and it is in fact an additional 8kg which would take your weight to X ?
or
3) A form of gatekeeping your access to necessary care ?
I would further note that you are disappointed that achieving the care you require in reasonable time is proving so hard with such delays, and seemingly vague plans. Ask him to note the full stipulations for you to access the care you need, and confirm the weight necessary. Inform him that the illness is causing immobility which is problematic in terms of weight management. Let him know you'll be seeking a second opinion as this is unsatisfactory.
If you can't get a reply then please remember you are entitled to a second opinion, so take it. It sounds to me as if he is gatekeeping and possibly using a random weight loss as a means to deflect. It's clear less weight carried is a factor in success and surgery recovery, so it's not a complete nonsense, but it does need to be an honest exchange and agreement rather than random figures plucked out of the air which then aren't honoured. Call it out and hold him to account. Being nice doesn't always get the care you need. Take a man in with you too to keep him honest and stick to his word. Shouldn't need to but medical misogyny is a huge factor in access to care.
Lastly ask for revised scans the moment you are on the list . If your scans are more than a year old that can be a bar to surgery.
I cry and tear my metaphorical hair out that basic care access is so difficult and hedged by such behaviour. Still , despite everything that's said and done. It's like yelling into a void at times. It's rubbish but somehow togetherness will enable us to get and do better.
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