After keeping a really detailed symptom diary I've noticed that I seem to struggle with horrid bloating, back pain (like early labour back pain), hip tightness/Pain, right leg pain, lower tummy pain and right flank pain up to my ribs as my period is finishing/after its finished and the during and after ovulation.......meaning I get about 3-6 days respite from this pain a month. I would go as far to say that I can cope with the intense cramping on days 1/2/3 of my period better than the other pain I described. Does anyone else fee like this!?!? I'm now on day 7 of my cycle with very light bleeding and this pain started rearing its ugly head again yesterday. Am I alone in this??
Thanks in advance ladies.....Gill xx
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Gill1977
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HiI feel your pain! I would say I’m very similar. My pain is definitely heightened around ovulation. Pain throughout cycle but the intensity floors me at ovulation more so than period pain. Mine is also mainly right side. I take pain relief everyday but try to keep the strong stuff for ovulation. Period pain used to be the worse but things started changing over last 6 months - I keep a symptoms diary so can see the change. I’m so frustrated by it, as like you, I get 3/4 days max of ‘normal’ every cycle. Have you been diagnosed? I have been referred to bsge center after MRI showed likely DIE and large cysts on both ovaries. Long wait ahead with waiting lists so just trying to take each day as it comes.
Thanks so much responding so quickly. Been feeling very alone in this. Its reassuring to here that others experience the same - but wish you weren't as it's horrid! 🤗I'm a bit of an awkward one diagnosis wise. I'm 43 and have had 4 laps. First at 17-nothing found, 2nd one at 19-endo found, 3rd lap at around 28 and endo was removed. 4th lap Dec 2019 no endo found!- mri in March of this year found 5cm cyst on left and multiple tiny fibroids in lining of my womb. Consultant thinks it maybe adenomyosis based on my symptoms but my pain and bloating have definitely changed (increased) in the last few months. I'm just so fed up. I can't help feeling that my constulant missed endo or the multiple tiny fibroids are actually patches of adenomyosis and it's got worse. I'm not on any form of treatment but I'm getting to the point where I just want it all it!
Got a video consultant at the end of February. I’m 41 so think they’ll tell me to get it all taken out but not keen on thought of HRT for so many years. They think I’ve got spots on my bowel so waiting on a colonoscopy too. It really is such a horrible disease. You’ve been through a lot already. Sounds like something has been missed. You could speak to GP for pain relief as they have provided mine whilst I wait for appt - might give you some relief. you’ve been waiting a very long time since your MRI, you must be thoroughly fed up.
It’s a very isolating condition as it’s invisible and not well known/understood. I’m very lucky that my husband has been so supportive and patient.
You'll be fine during your colonoscopy...had one in 2018. Make sure you have lots of yummy food to hand at home for afterwards. You'll be starving!Like you, I have a fabulous husband and I'm so grateful for his support and understanding. I'm utterly convinced that perimenopause has reared its ugly head too so he really is a saint at the moment!
Keep me posted on your consultation-here anytime you need a chat. Xxx
Your not alone, I totally understand what your describing, as I'm sure many of us do on this site.It's good you've written a symptom diary, they really help you to make connections within your cycle.
I always feel better the first few days of period no matter how heavy or bad the pains are....I think it's because there's something to show for the pain, if you get what I mean? The other pains are worse after which is probably your body trying to cope with the inflammation after period.
Again- thank you for responding so quickly. It really is appreciated. I know what you mean about feeling better first few days of your period (a couple of days before for me too). My girlfriends all moan about their periods arriving and I get to the point where I can't wait foe the release!I could cry reading both of your responses-it really has made me feel like I'm less alone in this. Thank you both so much. Xx
We must be mad wishing for the pain of a period because it's a relief from all the other pains! You shouldn't ever feel alone there's plenty of us on this site that can offer support, feel free to PM any time you want. I'm 47 currently doing prostap injections waiting for full hysterectomy and removal of bowel endo.
😭 the hormones can't cope with such an understanding response! Thank you. Totally appreciated. I think I feel like I shouldn't be posting on here as they didn't find endo in my last lap and adeno is suspected, but not confirmed. I need cold hard facts! Makes me doubt everything feel and think. How are you coping with the injections? Xxx
It can get overwhelming at times, no worries.Even with a diagnosis I think we still doubt what were feeling.
Injections have been difficult as they have put my endo symptoms on a major flare up but haven't had any menopause side effects this time round because consultant given me HRT to help with that.
Have you thought about starting any kind of treatment to help with symptoms?
I tried the coil at the start of the year but it was truly awful. Had it out after a month or so. It was also excruitating getting it in and out on my right side...no explanation as to why though.I think my next step is temp chemically induced menopause - i guess prostrap like you. Although I am wondering about trying the pill again (last time I was on pill (mini) was during breastfeeding my first daughter and it was hell).
Like all the girls on here, I just want an answer and a way forward. I'd quite like to feel like me again! Thank you so so much once again. Xxxxx
Im the same, ive got Adenmyosis and discussed this with my consultant at my last appt. In the past Naproxen helped but my stomach hates it so ive had to find other ways during this year to take the edge off.
I have researched lowering my inflamation improved nutriets through food and more walking taking good supplements this year. Accupunture has really helped with this I notice its worse when ive missed appointments now.
Ive tried Mefenamic another similar to Naproxen but stomach and also gave me insomnia.
Another thing I was given to try recently is Tranexamic to reduce blood flow, I only took a smaller dose then prescribed on period days to reduce flow, was told this could help the after period bit too as I was feeling contraction type pain and clots.
Dr said this can help get rid of any clots still in the inside the lining of the uterus where it congrigates in the wall and scaring with Adenmyosis so the body is still contracting after period and during Ovulation.
Ive got some of the same pain this morning but hoping to notice a difference, will report back if it has helped this week.
Morning! Thank you so so much for the detailed response. I really appreciate it. I have both naproxen (only given it just before the start of my most recent period and haven't taken it yet) and tranexamic acid. The advice your Dr gave you makes sense....I've been reluctant to take the tranexamic acid as I thought it would just mean that more blood would be trapped inside and cause more pain. It's good to hear that you've had a professional explanation on this.
Would you mind telling me what impact naproxen had?
I've been following a gluten free and lactose free diet for a year or so hoping it would make a difference. My diet is reasonable (though I do like my treats and prosecco 😉) - but it has def not been as good as it should be, particularly over the last few months. I also exercise-alot-takes my mind off the pain.
I will def look into acupuncture-is there something specific I should be looking for? Can I ask what supplements you take pls?
Think the Tranexamic is to thin the blood so it seemed to be more liquid. I only took qtr of the does as I too was nervous about it. The naproxen made us think I had Galstones was going for scans that came back clear and then realised after missing some doses it was the naproxen even though I had mentioned the naproxen at the time. Once I weened off did the pain under my right ribcage go away, like I had a balloon there is the only way to describe. I went to a holistic health centre where I found a great accupunturist who understood endo, I discussed this with them before making appt, she does a mixture of targeting the pain areas then inflammation and even knows if im stressed too.
As for supplements I firstly did do some private bloods with vitamin levels for another condition I have.
This came back that I needed B12, D and Ferritin (iron) which actually has allot to do with the blood loss.
So I researched lots, I take
B12 with folate daily
My GP prescribes a strong Vit D (once every few weeks in winter)
Magnsium daily
Vit C & Zinc daily
These I noticed the most change that helped me.
Ive been dabbling with Turmeric and fish oil but not sure any benefit.
I also have noticed a big change to stomach symptoms since getting a local Kombucca drink and Kefir now and again. It sounded gross but its put so much more bacteria back in my stomach it has helped my stomach feel better.
Reduced caffine too.
Plus ive just been eating loads more coloured veggies n fruit. But ive stopped cutting foods just reduce dairy and gluten but over Christmas & lockdown ive had more chocolate 😆
But I only did all this bit by bit throughout the last 2 years and started changing one thing at a time.
Hope some of this is of help sometime one thing in many can really help.
Sorry to hear that, my pain started offgradually over the years and worsened as the endo spread . After several years I dealt with daily pain, just like you are describing and it never left. So I was commenced on meds every day for well over 15 year .
I was on pain meds uo until 2 years ago then had the mirena coil fitted, had a few issues with that over the 2 years but then had it fixed and was put on decapeptal for about a year and now just stopped that last September and had the coil removed. Just had my first period and the pain was horrendous so I think ill be going back on the tramadol again. I came off it all initially as I was studying and it affected my ability to think.
Yes this is similar to what I am getting. It starts with my period and continues until after ovulation. Then a few days respite. I was in tears on the phone to the doctors yesterday.
I've got a referral so they just upped my codeine dose. But I have a little one so find it hard as it makes me light headed and drowsy! I wish someone would actually examine me!
Really struggling as my husband is a farmer and works too much and resents having to help inside the house. I feel like everyone thinks i'm exaggerating.
I'm so sorry to hear that you are also struggling. I know how hard it is coping with all this when you have little ones. In terms of your referral-maybe call and ask to see if you can be put on the cancellation list? I have yet another transvaginal scan in a couple of weeks to check the size of a 5cm cyst that was discovered in march through an mri (however, this is on my left and the epicentre of my pain is on my right).
Codeine makes me very woozy and upsets my tum so can't take it. I've just been subscribed naproxen. Maybe that's an alternative for you? I also use a tens machine which you can move about with attached to you.
It is so tiring being in pain and even worse when you don't really know why. Sending hugs xx
I'm exactly the same. Thought I was the only one. Pain that gets worse at end of period makes me wanna curl up and cry! Researched my head off. Asked GP consultant. Nobody seems to know what it is. Maybe 'trapped blood' is all I get told.
Tired of endometriosis and everything it has to offer! 😵💫😵💫
Really sorry you're struggling. On day 8 of my period and the bloating and back pain is horrid. Gets me really down. Some months are better than others but this month is a bad one. I've noticed that if I have an uncontrollable bleed at the start of my period, this pain at the end of my period rears its ugly head. It's like my body is just all angry and inflamed! X
So true. Same here. I'm starting to think that Endo just wants to divide and conquer or take over, leave me to just about function somewhere in the background ! 😅. Ugh...I really hate it.
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