so fed up : Hiya so I’m in need of a little... - Endometriosis UK

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so fed up

Ginge2001 profile image
3 Replies

Hiya so I’m in need of a little rant and just want someone to understand. So I have stage 4 endo and my rectum is fused together to my uterus and my ovaries are stuck behind my uterus. I had a mri 5 months ago and now I feel a lot worse then I did 5 months ago. I have lost my job and now currently on ESA and pip I’m taking to a tribunal. I am waiting on a date for surgery but I either have to use a walking stick or wheelchair to get around. I keep wetting myself and the doc thinks because of the organs that are fused together due to my endo this is the reason why. I’m only 22 year old and this is no way for a 22 year old to live!

I have tried everything the mini pill, combined pill, zoladex and now currently depo injection. None of this is working. I’m also on 8 pregabalin a day and duloxetine but these are not working and I have never been in so much constant pain in a long time. And I need something stronger to take and I can’t get an appointment until the end of January next year?!

I just feel so fed up of the way everything has happened

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Ginge2001
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Bakewey profile image
Bakewey

Things will eventually get better. My condition was v similar to yours. Had intensive surgery a few months ago and I’m now having a phased return to work. The recovery journey has been blighted with twists and turns- not easy at all. But now I’m coming out the other end, I just want to remind you, this can and will eventually get better.

Rant, chase the referrals and try to stay positive ❤️

Ginge2001 profile image
Ginge2001 in reply toBakewey

It’s horrible isn’t it! And good I’m glad your finally getting there x

Ginge2001 profile image
Ginge2001

I just give yous a follow x

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