Post Op Laparoscopy, Endo removal - Endometriosis UK

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Post Op Laparoscopy, Endo removal

JH21 profile image
JH21
2 Replies

Morning Ladies!

I had another Lap 9 days ago to find I was yet again smothered !

background….

2021- laparoscopy , endo removed

2021- prostap

2022- Ovaries removed, endo removed.

2022-2024 completely pain free, lived a some what normal life, was amazing !!!

March 2024- heavy bleeding, no ovaries 🤷🏻‍♀️

July 2024- Hysteroscopy

August 2024- Hysteroscooy with ablation

October 2024- Laparoscopy with endo removal again 😭

like ….. what ?

I’ve got adenomyosis too now. So specialist wants to do hysterectomy. Fine what ever at this point.

but what am I supposed to do, in two years this has smothered me again!

like am I supposed to just keep having surgery every two years to try and have a semi normal life ?

that feels so invasive .

but I am only 32, I want to live my life.

Luckily I had my kids young so I’m not upset about the ovaries or hysterectomy.

Just if anyone has anything to say, 🤷🏻‍♀️ any input or advise . I’m all ears.

I also feel terrible after this op.

my legs hurt, my tummy just feels like I have a constant stitch, my hips hurt, feel like if I attempted to stand up straight I’d tear something 🤷🏻‍♀️

sorry for venting, thank you for listening xx

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JH21
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Faylen34 profile image
Faylen34

So sorry to hear your journey with endo so far, it does feel never ending at times.

I had surgery 3 weeks ago and never expected it to be so tough. My specialist said 2 years average estimation before I'd need next operation but some women can go up to 5 years. It is madness that this is our life.

Would you consider prostap again to try reduce the speed of growth? How was your experience on it? (I am on month 5)

My advice is be kind to yourself, rest as much as you can, and keep being vocal. Try not to push yourself too soon. Noone should have to keep being in pain all time. Surgery isn't a magic cure for us and sadly I think I pinned a lot of hope on mine. You have support here and hopefully things will get better for you x

JH21 profile image
JH21 in reply toFaylen34

Prostap isn’t an option anymore as I had my ovaries removed already.

I’m so good at over doing it after surgery 🤦🏻‍♀️

Work are beating my ass for time off again so I need to return asap before I lose job! I’m done trying to explain this to them.

They just seem to think surgery done, miracle cure, back to ‘normal’

I’m just so mentally exhausted from all the fighting 😔

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