Rectovaginal Endometriosis found during h... - Endometriosis UK

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Rectovaginal Endometriosis found during hysterectomy and I'm getting the symptoms again

Lizziedrizz profile image
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I had to have a hysterectomy in March this year at Poole Hospital, Dorset, as I had a fibroid that couldn't be removed with less invasive surgery so hysterectomy was my only option. Since the hysterectomy eventhough my ovaries weren't removed, I am now perimenopausal and on HRT gel and progesterone.The fibroid had caused alot of problems for a couple of yeats before my hysterectomy, with bleeding which included really gross clots and spotting between my periods and alot of pain.

The surgeon who did my hysterectomy is an endo specilist as well and he found that I have rectovaginal endo but for some reason and I'm still waiting to find out why, he didn't tell me before I was discharged that I had endo. I found that out myself several months after my hysterectomy when I read the discharge letter my surgeon sent to my GP which was only available to read through my online medical records on NHS app. As he found the endo during the surgery, it was his responsibility to tell me himself before I was discharged and for him to make a post op appointment for me to see him a few weeks later.

During the hysterectomy my surgeon said that he had to excise the endo from around my urethras, my anus and vagina which I had hoped would be the end of it but the same kind of symptoms that I had before my hysterectomy which I just thought were due to the fibroid, started up again about 3 months after my hysterectomy.

The symptoms are pelvic pain mainly on my righthand side, very intense pain all the way down my groin when I need to poop and my bladder at times doesn't tell me that I need to pee so when I do go, I find that I have a very full bladder. I don't get these symptoms all the time which really doesn't help but my GP believed me when I explained all the symptoms and due to the complete lack of information from my surgeon about the endo, I now have an appointment with my surgeon in Januaty 2025

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