Last week I had my follow up appointment after my laparoscopy in March. (Previous laparoscopy in June 2013 found endo and burned it away). Slightly confused to be having a follow up given the surgeon had said I wouldn't be having one as no endo had been found, I'd simply be discharged from gynaecology.
My surgeon for the lap in March was different to the consultant I had been seeing up to that point. The appointment I had last week was with the registrar of the consultant I'd had been seeing. The registrar was the least sympathetic person I have ever encountered. He made me feel small, stupid and worthless. He explained that the lap had found no endo and therefor there was no cause for my pain. The surgeon, when moving my bowel out of the way, had noted it was slightly hard and the registrar reiterated this to me. So far as I'm aware the Surgeon did not investigate the bowel for endo. I then explained all the symptoms I am currently getting - continually pain and pressure in pelvis, pain on urination during period, constant constipation, pain during sex, occasional bleeding after sex, excruciating period pain, extremely heavy periods and fatigue. The registrar has ignored all of this and merely told me I'm being discharged from gyneacology because there is nothing wrong with me as far as they are concerned. He will now write to my GP to get them to refer me to a bowel consultant (who I've been referred to previously and all he could diagnose with a slow transit, having dismissed that endo could ever be a problem for the bowel) and to a psychologist because apparently my pain and symptoms could all be in my head. He also told me he was very surprised that I had heavy periods and bad period pain whilst on the pill as its not something that happens very often.
I've basically left the hospital feeling like a liar and a fraud even though deep down I'm not. How can I have had endo almost three years ago, be now experiencing the same symptoms again and have nothing. My surgeon, so far as I can tell from the conversation I had with him after my latest lap, merely moved my womb around and "flipped" my ovaries. I'm not aware of him having fully looked all around my pelvis, bladder, bowel or anywhere else.
About a week after my surgery I received a copy of a letter which was being sent to my GP informing them I'd had the procedure which said I had large veins in my pelvis. Does anyone know what that means? Is that something which needs looking at? And by whom?
I'm just so tired of fighting this. And then to be told it might all be in my head was just the final straw. I told him I wasn't interested in being referred back to the bowel consultant or indeed the psychologist but he was insistent that that was what he was going to do.
How do I take this any further? How do I get taken seriously and looked at properly? I'm absolutely sick and tired of it. I'm due to move house soon and will therefore end up in a different nhs trust area, so will it just be a case of starting from the beginning again with a new gp and then gynaecology department? I noted that one of the hospitals in Bristol have a specialist endo centre. Despite the fact I wont be within their "catchment area" so to speak, could I still get myself referred there as in terms of where I'm moving to, that would be my closest centre?
Sorry for the rant ladies. I just needed to vent!