Does anybody know what the expected wait is for severe endometriosis surgery around the country?
or would like to respond how long you've been told you have to wait on the NHS?
Mine is for endometriosis and colorectal level 2 and it looks like I have another 12 months wait!!!
(I'm in Surrey)
Lucy xxxx
I'm in North West, been told atleast 12 months or longer. Have deep endo affecting bowel, need full hysterectomy
oh this is bad, it looks like very long waits everywhere.
Do you remember how long ago it was since your GP referred you to the hospital?
Hi I wasn't referred by GP , had acute pain several times in past two years and was hospitalised, given iv drips antibiotics , and then discharged with oral antibiotics. It's happened so often now, like a repeat pattern each time. Found out finally this October,after first vag ultrasound and a mri, that it was actually deep endometriosis and pain was because of bowel , ovary , womb n rectum endo , things have become attached down there. Hoping surgery sorts it all out. Can I ask - what's colorectal level 2 stage? Hope you're managing OK whilst waiting, it's not easy
Im in the south of england ( portsmouth) Ive gotta have a full hysterectomy and ive been told 12-18 months
omg....how long ago was it since your GP referred you to the hospital?
I had lap surgery jan 2024, mri in march 24 that confirmed severe endo, adeo, cysts, fibroids. Met my consultant in july 24 and signed the paperwork for surgery thats when i was told 12-18 months.Been on zoledex for 11 months now
I'm north and I've been on the waiting list over a year for level 4
oh no, do you remember how long ago it was since your GP referred you to the hospital?
Has it been like a 6 month wait to see the consultant, and then another wait for over a year for the surgery?
I had my MRI pretty quickly, spoke to a specialist and was waiting oct - feb until I got put on a waiting list (so actually my mistake, in feb it'll be a year - keep thinking it's been longer!) I have had a pre-op pre-op - which is now a thing apparently and that was just some online survery thing, and then apparently proper pre-op will be in a few months so hopefully not too long to wait now 
I'm in the East Midlands - awaiting my third lot of surgery, diagnosed with more cysts last May, months of scans and delayed appointments, then I got told my local hospital was referring me go a specialist centre as its too advanced for then to deal with. This hospital told me it's 12-18 month wait for surgery.
I was diagnosed a while ago at stage 3 with no excision during my laparoscopy as the surgeon apparently didn’t want to cause any additional scarring. Turns out he actually also discharged me from care instead referring me for surgical management.
After trying to go back following some other unrelated health issues, I was then told I needed a whole new GP referral to start the process again. Saw my GP in Dec 2023, got my first appointment in August 2024, MRI and CT in September 2024, told in October 2024 it had progressed to stage 4 deep infiltrating endo and now need surgery with multi disciplinary surgical team as am facing a possible bowel resection due to it. Called by admissions team in December 2024 and have surgery booked for March 2025.
I am happy with the clinical team I am under now and have met all consultants and surgeons involved however I think they have recognised there was a catalogue of failures in my care originally which have now impacted me significantly. To the point where I am now 41, have never presented with pregnancy and have been told the disease has left me with using donor eggs as my only option of having a child. The care I received previously was simply not good enough and had I received the correct care then, I would not be facing major, complex surgery now nor would I be facing the fertility journey I am.
A lesson from me, keep following up, if you think you are annoying them who cares. It’s your body and your future that is being impacted not theirs.
Sending love to anyone going through this horrific journey x
I’m in Glasgow and I’ve been told 2 and a half years minimum.
Edinburgh area here 👋 72 week wait for even an initial appointment for gynaecologist, surgery wait they won’t even tell me as the list is so long 😢 I image 2+years
Aberdeen - over 1 year for consultation and another year after that for surgery. If your lucky ☹️
hun from diagnostic surgery to my next surgery was a year unfortunately as they have to get right surgeons staff in on the surgery which takes time. I was in agony and even after surgery last may after two months wam bam severe pain again . I would keep phoning the gynaecologist saying we wait so long for a diagnosis and then we are made to wait even longer . I’m in the southwest I think it just depends where you are . Unfortunately the women who are on surgery list have most likely got severe endometriosis with other organ involvement. All I was told was other women in some boat and I had to be patient. I just had a clearance and bowel shave as I was told deep and possibly needing resection when they got in wasn’t as bad as thought for the bowel resection so was just cutting out noduals. I wasn’t allowed to have a hysterectomy at the time as too many internal wounds could lead to sepsis and as I had sepsis after my diagnosis lap they didn’t win to risk it. Xx it’s a long wait which I think some surgeons don’t understand as it messed with my mental health and working life. As I would be off alot due to illness xx keep chin up xx
NHS waiting list - how long did you wait for your laps?
Private Laparoscopy ?? What are your thoughts ? Also how long do you wait for the private one ?
surgery for endo 
How long to wait from pre op assessment to surgery?
How long do i wait for results.
