How long is your wait for surgery?

[LucyMarie24]

Does anybody know what the expected wait is for severe endometriosis surgery around the country?

or would like to respond how long you've been told you have to wait on the NHS?

Mine is for endometriosis and colorectal level 2 and it looks like I have another 12 months wait!!!

(I'm in Surrey)

Lucy xxxx

[Hannah818]

I'm in North West, been told atleast 12 months or longer. Have deep endo affecting bowel, need full hysterectomy

[LucyMarie24 in reply to Hannah818]

oh this is bad, it looks like very long waits everywhere.

Do you remember how long ago it was since your GP referred you to the hospital?

[Hannah818 in reply to LucyMarie24]

Hi I wasn't referred by GP , had acute pain several times in past two years and was hospitalised, given iv drips antibiotics , and then discharged with oral antibiotics. It's happened so often now, like a repeat pattern each time. Found out finally this October,after first vag ultrasound and a mri, that it was actually deep endometriosis and pain was because of bowel , ovary , womb n rectum endo , things have become attached down there. Hoping surgery sorts it all out. Can I ask - what's colorectal level 2 stage? Hope you're managing OK whilst waiting, it's not easy

[Chartolfrey]

Im in the south of england ( portsmouth) Ive gotta have a full hysterectomy and ive been told 12-18 months

[LucyMarie24 in reply to Chartolfrey]

omg....how long ago was it since your GP referred you to the hospital?

[Chartolfrey in reply to LucyMarie24]

I had lap surgery jan 2024, mri in march 24 that confirmed severe endo, adeo, cysts, fibroids. Met my consultant in july 24 and signed the paperwork for surgery thats when i was told 12-18 months.Been on zoledex for 11 months now

[hobbitty]

I'm north and I've been on the waiting list over a year for level 4

[LucyMarie24 in reply to hobbitty]

oh no, do you remember how long ago it was since your GP referred you to the hospital?

Has it been like a 6 month wait to see the consultant, and then another wait for over a year for the surgery?

[hobbitty in reply to LucyMarie24]

I had my MRI pretty quickly, spoke to a specialist and was waiting oct - feb until I got put on a waiting list (so actually my mistake, in feb it'll be a year - keep thinking it's been longer!) I have had a pre-op pre-op - which is now a thing apparently and that was just some online survery thing, and then apparently proper pre-op will be in a few months so hopefully not too long to wait now

[Amyrebecca246]

I'm in the East Midlands - awaiting my third lot of surgery, diagnosed with more cysts last May, months of scans and delayed appointments, then I got told my local hospital was referring me go a specialist centre as its too advanced for then to deal with. This hospital told me it's 12-18 month wait for surgery.