disney trip left me exhausted.

[Joonaspryte]

Hi all,

Ive just been on a five night trip to disneyland paris for my autistic daughters 18th.

We went to the disney village for the half of the first day, that wasnt too bad.

But for the second day and my daughters actual birthday, we hired a wheelchair for me which my poor husband pushed. I went on the kiddy type rides, small world and pirates of the carribean. (Which was a bit too much really)

To be truthful, after only a few hours i was so exhaused, i kept quiet though, as i didnt want to spoil the much anticiapted birthday.

But but the end of the day, i had never felt so exhausted in my life, i was in pain and felt lifeless.

i was surprised, because my poor husband had been pushing me around.

For the rest of the trip, i stayed two days in bed, taking painkillers and sleeping and had to waste my ticket money for the second day in disney studios, ( not that i would have been going on any rides anyway)

My question is, how many of you would have probably also been the same?

i feel like i let my daughter down and im old before my time. I feel a burdon to be honest.

[Dogmad6]

I would say you did well to even do what you did. I couldn't have done it. Not surprised you ended up in bed. It's how this illness is. I'm sorry to hear about your experience but I know exactly what it's like. XX

[Joonaspryte in reply to Dogmad6]

So kind of you to answer, and give support. It means so much. Xx

[Rainbow2468]

Hi you didn't let your daughter down you did your best, you siund very poorly so give yourself a break. I'm sure you're an excellent mum too, sending you a big hug x 🤗❤️

[Joonaspryte in reply to Rainbow2468]

Such kind words, thank you so much.This group is so supportive and has made such a difference to me.xx

[Rainbow2468 in reply to Joonaspryte]

You're most welcome, abd yes this is a lovely group. Hope your having a lovely day x

[Rainbow2468 in reply to Rainbow2468]

Ooh and could i say i never attributed my exhaustion after a day out to my endometriosis, so thank you perhaps I'll stop beung s9 hard in myself when I get so tired x

[AllthatGlitters]

Hello we don’t let anyone down, but always feel like we do. I also get exhausted after having a day out. I have now accepted that and I make sure I rest. I hope you had a wonderful time on the days you could manage 💜

[Joonaspryte in reply to AllthatGlitters]

Thank you so much, everyones kind words go a long way in making me feel less alone 😊x

[AllthatGlitters in reply to Joonaspryte]

You are certainly not alone 💜I focus on what I can do, not what I can’t xx

[Cocoacupid]

hun honestly don’t feel bad your tried your best with the situation. I’m autistic as well as having endo I just get really overwhelmed with certain activities and situations. It does take it out of you for sure if I’m too overwhelmed I also can’t cope and stay in bed and the fatigue and pain is awful. The sensory overload physically makes me feel ill. Your daughter will be happy you made her birthday magical honestly . The thing is it’s never selfish to look out for yourself . At times family events etc if I leave early to lye down on my bed so be it. You have to make sure you do look after yourself as well and try to be honest with your husband and daughter your daughter is now an adult and am sure she could read or get the sense you were unwell . As I can certainly pick up vibes from other people I may not be able to read people fully but I can certainly sense when someone isn’t right. Instead of trying to hard I let others now tell me how they are feeling in their time instead of second guessing the what ifs or maybes . X

[PastaGirl13]

I'm so sorry you had to experience that. But it's so so important you know you're not a burden at all! All your family really want is your company and your presence and you gave them that. Even though it was a huge challenge for you, you showed up for your daughter. That is enough! You don't always have to be 100% to make an impact. Your daughter is going to look back on that trip and remember the wonderful time she got to spend with you and her family.

I couldn't have coped with a trip like that with my current symptoms so I understand how useless it can feel when you want to do so much but you just can't. It can feel very defeating. But what I see is a wonderful mum who is fighting to give her family as much as she can and that is something to be proud of! You are amazing, sending so much love x

[Joonaspryte in reply to PastaGirl13]

Thats such a lovely message from you , thank you so much .

Sending love back xx☺️