Is anyone taking naltrexone? : Hello, I had... - Endometriosis UK

Endometriosis UK

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Is anyone taking naltrexone?

Tropic profile image
11 Replies

Hello, I had surgery six days ago and thought this might be useful for anyone else to know:

Right before I went into the operating theatre, the anaesthetist was going over my chart and said to me “Are you taking this?” (naltrexone). I had actually ran out a few days before my surgery, which he said lucky I had as it stops pain relief from working and said that if I had still been on it, he would have had to cancel my surgery.

So I went through surgery and then as I was waking up in recovery, my God. The pain. It was so bad. I woke up in so much pain that as I was waking up, I was crying and moaning and through my oxygen mask and sedation, trying to tell them I was in pain. It was such an awful experience to wake up like that.

The anaesthetist later came to see me and said that I still must have had some of the medication in my system. They did manage to get the pain under control but it took a while. Once it was under control it was fine. The poor lady next to me in recovery was crying too and saying she was in pain too. Awful. I wonder if she had had endo surgery too?

So just a word of warning to think twice if you are on or your GP prescribes naltrexone!

Sending love to all x

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Tropic profile image
Tropic
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11 Replies
Moon_maiden profile image
Moon_maiden

How are you recovering after surgery? Hope you’re ok.

What did you take naltrexone for? I’ve read on low dose it can work as an anti inflammatory.

allym92 profile image
allym92 in reply to Moon_maiden

I'm on it & was put on it as an anti-inflammatory!

Moon_maiden profile image
Moon_maiden in reply to allym92

Hi

Thank you, was it GP or consultant who prescribed it? Is it working?

allym92 profile image
allym92 in reply to Moon_maiden

Consultant (gynae). I found that my generic daily abdominal pain went down but it did nothing for bladder pain / symptoms which are what are crippling me. I had little to no side effects on it but a friend of mine took it and suffered badly with side effects. I think like anything its worth trying if you have the means to but if its not working for you then try something else xx

Moon_maiden profile image
Moon_maiden in reply to allym92

Thank you, sorry it hasn’t helped all your pain. I’ve emailed the pain clinic 🤞, otherwise I’ll have to try gastro or get GP to refer to Gynae again.

Hope you find out what’s causing bladder pain.

allym92 profile image
allym92 in reply to Moon_maiden

Worth a shot! My pain specialist that I went to said he would have prescribed it too except that I was already on it so you should be OK! Hope you get sorted :) xx

Tropic profile image
Tropic in reply to allym92

Yes that’s right 😊 at low dose it’s used for inflammation and pain. I was on a few different things so can’t tell if it worked and nearing surgery I was in 24/7 pain so nothing really worked in the end

allym92 profile image
allym92 in reply to Tropic

Sorry to hear, I know the feeling :( xx

allym92 profile image
allym92

Hi! I'm on it but have never had surgery on it so that's a really good point to know about. So sorry that happened to you :( did you find it helped at all before the surgery day to day?

Hope you are recovering OK xx

Tropic profile image
Tropic in reply to allym92

Thank you xx

Endofitall profile image
Endofitall

Bless you that should been picked up at pre op. It’s original use is to block morphine action (and related opioid) eg when overdose (which can be unintentional).

I hope you’re doing okay now! X

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