Flare ups! 😶: Good evening ladies! I've... - Endometriosis UK

Endometriosis UK

70,134 members • 51,941 posts

Flare ups! 😶

Katie1982 profile image
Katie1982
•10 Replies

Good evening ladies! I've been hit full force with a major flare up! Knocked down and struggling to get back up.... it's been a while since I've had it this bad. Had surgery 2 and a bit years ago followed by the coil. Helped keep the pain from getting too bad. But since last week I've felt a build up, wasnt sure what it was at first and then yesterday took to my bed! Floored. So tired, so sore, so drained. I'm off to a 3 day conference tomorrow, life goes on doesn't it? How do we keep going? I'm just feeling really low today. I have come on here for a good moan because I feel like my friends dont really get it. Burst out crying in work in front of my boss this morning, she was kind and supportive but I still felt as though I was making a mountain out of a mole hill........ it will get better, I just worry what the next steps are.... more surgery? I've been on the keto diet which has been working great so far, but this episode has thrown me. Why now? I worry about what my insides look like as I've taken to Google...... silly I know! You ladies on here are so strong! I am proud of you all as endo is not easy to live with! Love to you all!!!!! Xxxxx 🥰

Written by
Katie1982 profile image
Katie1982
To view profiles and participate in discussions please or .
Read more about...
10 Replies
•

Hello Katie!

Really sorry to hear about your pain and struggling. I know exactly how you feel (especially that feeling of making a mountain out of a mole hill 😔)

I'm in pain now since my period is back :(

I hope you feel better soon hun, and yep we all are stronger than endo!

Lots of love and blessings xxx💛💛🤗

Katie1982 profile image
Katie1982 in reply to

Thanks hunny xx

Thecraftyadder profile image
Thecraftyadder

I've been having a really crapy few days of nerve pain down my legs, hip and back. I had surgery in November, didn't get on with the mirena and its depressing to be dealing with so much pain still. I nearly cried in my office yesterday. So I'm just sending you a sympathetic hug! Hope you manage to get through your conference. Having an illness No one can see is a nightmare isn't it? Only fellow sufferers know how much we go through and have to push ourselves to do to get on with normal things in life! Each day we have to find new depths of inner strength! X

Katie1982 profile image
Katie1982 in reply to Thecraftyadder

Too true! Thanks for the love xx

Giraffe92 profile image
Giraffe92

I'm so sorry to hear you're struggling :( a conference is just what you need right now! Be sure to rest when you can and take a heat pad or a hot water bottle with you x

Katie1982 profile image
Katie1982 in reply to Giraffe92

Thanks so much lovely! So nice to know I cam share stuff here xx taken seriously!

Peebles2sarah profile image
Peebles2sarah

I’m sorry about all of your pain. I’ve been in a low place recently too and just had surgery yesterday. I guess we just keep going because that’s the only choice we really have. I’m trying to just accept that this is my life and I’ll need to adjust accordingly. I’ve also tried to learn to forgive myself. Flare ups happen, low days happen, and I can’t beat myself up over this. We are strong af!! Best of luck! I hope everything calms down soon

Katie1982 profile image
Katie1982 in reply to Peebles2sarah

Just have to keep going!!!!!! Sending love x

Tri-endo profile image
Tri-endo

Hi Katie! Yeah it’s terrible isn’t it! My last big hell flare up was in 2011/ 12 when I found out at the age of 39 I had endometrosis.,, very late and only after ruptured cysts and severe complications requiring 2 emergency laparotomies! Hell! I have fought back, like you with diet and exercise building up to triathlons and half marathons which I love! then a month ago bam.... ruptured cyst! I feel tired jaded and crap.... and moving to a new city I don’t have my great Gp for support now. So I feel your pain and you just have to remember like me we have got well before but it’s hell when these flares ups come on us and like you I’m fearing more operations waiting to see the speacialist..... take care! And hope you feel better soon! Tomi

Katie1982 profile image
Katie1982 in reply to Tri-endo

Oh my word, that sounds awful! You sound amazing though! Chin up, we share the knowledge of how bad it can be. But we also share the strength x

You may also like...

Flare ups and acid reflux

does anyone else get bad acid reflux when having an endo flare up? It’s been so bad lately and...

Flare up

Flare up/doctors tests

Does it depend on how bad it is and where it is? Hope you all can help and keep your fingers...

Severe Flare up but no bleeding..

just don't know what to do in the meantime. These flare up's have been on & off since March last...

First flare up since surgery

Hi everyone, I've just experienced my first flare up since surgery and I genuinely thought I was...