Flare ups after Zoladex: Hi all, I just... - Endometriosis UK

Endometriosis UK

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Flare ups after Zoladex

Dodger14 profile image
7 Replies

Hi all,

I just wanted to ask if anyone had had a similar experience. Last year I was given 9 months of Zoladex which was incredible (except the side effects) it kept my pain away for around 7 months after my last injection, which then came back with a vengeance. I was just wondering what anyone else's next step was, assuming they won't give me the Zoladex again. I am back at the gynecologist next month, and am hoping they can stop the pains again because it's really hard to cope with.

Thank you all x

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Dodger14
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7 Replies
JulesUK profile image
JulesUK

I had two courses. Once for six months and once for two years with HRT. Each time I stopped the symptoms returned. The Mirena is what’s worked for me long term though I appreciate its not for everyone.

Dodger14 profile image
Dodger14 in reply toJulesUK

I have the mirena already, it unfortunately hasn't done much for me. Hopefully the Zoladex will help again if that's what they do

JulesUK profile image
JulesUK in reply toDodger14

Sorry it didn’t help. Hopefully they will let you start on zoladex again for a longer time.

_Noo_ profile image
_Noo_

I was on Zoladex with HRT for 18 months. They now have me on Provera 10mg 3 x per day - body still settling but hoping it calms things down. Good luck when you see they Gynea.

Dodger14 profile image
Dodger14 in reply to_Noo_

I hope the provera works for you! Thank you x

hcromps92 profile image
hcromps92

Hi there! I've been on zoaldex for over 10 years. As long as your bone health is OK, gynaecologists do often prescribed zoladex for prolonged periods. So if that's your preference, I can't imagine there would be much resistance. X

Dodger14 profile image
Dodger14 in reply tohcromps92

This gives me hope thank you! I just want the pains to stop and that is literally the only thing that's worked for me

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