Tibolone or sequential hrt?

[Mindfullness4791]

I had a hysterectomy 5 months ago for Adenomyosis/fibroids. They now think I have Endometriosis as my pain has flared up since starting hrt. I'm on Tibolone but I'm still in so much pain. Has anyone had experience of this and have they found sequential hrt better? I don't think the Tibolone is strong enough. The specialist has suggested I stop hrt but there is no way I can, as the menopausal symptoms were brutal.

[Sunset-lady]

I would look into progestetone therapy. This is where you take more progesterone than estrogen. You still take estrogen but only a small amount as we are probably estrogen dominant if we have endo x

[Sunset-lady]

Meant progesterone x natural progesterone not progestin. Feel free to message me

[Brambledoggy]

I would tend to agree with the comments below.

I’ve had debilitating endo all my life, then HORRIFIC perimenopause and then even worse menopause. I was really, really scared of any HRT “reactivating” my endo lesions through oestrogen dominance. So I put it off.

It’s just that the menopause symptoms were so dire I knew I had to do something. A private and lovely Doctor put me on 100mg Utrogestan (tablets) and 75mg Oestrogen (patches) on a continual basis. I was fine for over two years, felt amazing, then bam, endo and pain back with a vengeance. I was investigated for post menopausal bleeding twice and all thankfully all my results came back fine.

So I’ve now read The Hormone Repair Manual by Lara Briden and am a bit more enlightened. Though there’s not much information on endometriosis specifically, but it does all make sense.

I’ve upped my Progesterone to 200mg and this week actually lowering my Oestrogen patch to 50mg and then maybe even to 25mg. Currently sat here pain and bleed free for last two days, so I’m hopeful, but TBH given the last 30 years of chronic pain and bleeding, I’m obviously a bit sceptical.

All we can do is try and educate ourselves instead of “always” just relying on what the medical professionals are happy to dish out. They always treat the symptoms and never the cause and it’s up to us to do what’s best for our bodies. I don’t know about Tibolone, so can’t comment on why they put you on that instead of standard HRT. Others on here may know?

Maybe get a second opinion as I know from first hand experience that pain from endo, plus dealing with menopause is absolutely brutal.

[Lindle]

Do you still have ovaries?

[Mindfullness4791 in reply to Lindle]

No, I had everything removed x

[Mindfullness4791]

I'm thinking I probably need to see a menopause specialist but not sure where to start, if I'm needing to tweak the doses? I definitely need to do more to help myself too. I've just felt so overwhelmed recovering from the surgery, brutal menopause symptoms, return of the pain and my iron levels are on the floor I'll get there though

Thanks for all of your support. It means a lot xx

[Lexie26]

I would definitely try the patches but you need the combi NOT the sequential. If you have endo you must have combined HRT. Tibolone is banned is the US so have a look at that. It's not body identical. You can also ask for a referral to a menopause clinic but may be better off under the care of an endo specialist if you have this. If you do have endo you must make sure you take combined HRT. Super important