Anyone taking Tibolone HRT Tablets? - Endometriosis UK

Endometriosis UK

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Anyone taking Tibolone HRT Tablets?

Sweetyassi
Sweetyassi

I would like to hear if anyone is or has taken Tibolone HRT tablets and what your symptoms are or were. I'm about to go on them and am having second thoughts about taking them. The last lot of HRT that I took brought back my endo, so will taking these new HRT make the endo flare up even more?

Sweety

8 Replies
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I was on Tibolone whilst on Zoladex for a year and now 7 weeks after hysterectomy. Side effect wise I feel ok I do have abdominal pain and swelling but hey I’ve had a hysterectomy, I am loosing my hair and nail are brittle but I’ve put that down to menopause!

Sweetyassi
Sweetyassi in reply to ccsmith

Hi ccsmith,

Thanks for replying to me. I had my hysterectomy done in 2011 and in 2017 got both my ovaries removed. I'm guessing here that my surgeon must have missed some endo and with the HRT tablets its brought it back. Which I did get that confirmed by my consultant, he now wants me to try tibolone HRT tablets, he said these tablets might continue to make my pains worse or it may help. Like you, I am loosing my hair but my nails are strong. I have bloated feelings and swelling.

Hope your recovery goes smoothly. Wishing you a speedy recovery.

Sweety

ccsmith
ccsmith in reply to Sweetyassi

I was told Tibolone is synthetic so shouldn’t encourage endo! I had my ovaries out as well and my consultant said it was the safest HRT. To be honest I’m not sure how HRT will make your pains better! If your endo is regrowing it needs removing!

I hope things work out for you. We all dread if this disease creeps back. It’s my worst nightmare.

Big hugs

Sweetyassi
Sweetyassi in reply to ccsmith

Hi ccsmith,

I was told by my consultant that it is synthetic but it may still encourage endo to grow. He wants me to try it in case it works for me, but even he is unsure if it will help and he's an specialist. So you can see how confusing it is with so much information out there but no one is sure of anything as every woman is different. I have tried everything and still I am in pain. I know i have adhesions and endo can produce adhesions itself.

Sweety

ccsmith
ccsmith in reply to Sweetyassi

Ohh don’t say that 😬 I’ve had enough and just want some pain free time. I must admit I am anxious as still getting pain in my right side and scared it’s the endo! But I’m only 7 weeks post op so trying to stay positive. I agree there Sadly is nothing that can tell us what will work. I do remember my consultant saying clearly I will probably be never pain free and the op was to stop bleeding & 🤞🏻 reduce pain significantly.

I have everything crossed for you 🤞🏻🤞🏻

Sweetyassi
Sweetyassi in reply to ccsmith

Hi ccsmith,

Sorry I don't mean to scare you. I hope you do feel better and your pains stop. My body is different and painkillers and meds don't work for me.

Sweety.

I have been on Zoladex with Tibolone for 3 months. Everything has been fine apart from spotting sometimes full on bleeding every day and hot flushes. I can deal with hot flushes but the bleeding has been a nightmare so they have now switched me to Femoston-conti instead of Tib. I have been getting new pains but I think it’s more breakthrough pain then because of the Tibolone

Hi,

Thank you for replying to me.

I was on Femoston-conti and it brought back all my endo and adhesion pains. I have been told to go on tibolone HRT tablets but I'm having doubts in taking them. I don't have bad hot flushes, in fact I only get them in the evenings which don't last long and aren't so bad.

Sweety.

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