Surgery Cancelled .. because I look to fi... - Endometriosis UK

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Surgery Cancelled .. because I look to fit and well!

Sparkles2000 profile image
9 Replies

I had to post this due to how utterly ridiculous my day was yesterday. After 2 years of scans and appointments and 6 months of prostap. My doctor cancelled my surgery to remove endo and adhesions and also confirm the 6cm growth on my uterus is not suspicious because .. I quote .. you look fit and well ! Knowing I have all that going on inside and because I looked ok externally sent me home. Told me if I end up in agony like before.. which is likely go back and they will start again.. with what? I was admitted and about to put my gown on. That was literally playing god ..

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Sparkles2000
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9 Replies
Tangoandmax profile image
Tangoandmax

This is absolutely a PALS complaint. How utterly ridiculous.

MrsPaddingtonBear profile image
MrsPaddingtonBear

Hello

!!!!!!! Is all I can politely write. If they had cancelled because there was an emergency or they discovered you had a temperature etc then fine, you’d be a bit miffed but would accept it. But the reason he gave is absolutely ridiculous and insulting. I would complain to PALS at your hospital. I would also go back to your GP asap and get a new referral to a different consultant asa a matter of urgency. You can specify that you do not want to see the consultant you had previously. Be strong this cannot be left like this. We are all here to listen and support good luck

Stomacron profile image
Stomacron

So angry to hear of your experience. It’s another demonstration of the medical profession being overtly biased against women and their pain and conditions. Surely this is grounds for complaint. We must stand together to change this culture. 👿😡

LME5 profile image
LME5

That is beyond disbelief. What a horrific modern day example of medical misogyny. I'm honestly shocked & appalled. But you know what, see it as your great escape. I wouldn't let such a doctor touch me with a barge pole let alone operate on me. As they say, rejection is redirection. Go back to the drawing board & speak with your GP about this occurrence & ask about being referred to a respected, reputable endo specialist for surgery

Moon_maiden profile image
Moon_maiden

Make a complaint that is horrendous, of course we look ok, that’s the nature of the disease 😡🙄 you can’t see abdominal pain. What is wrong with these Drs 🤬

Scoutybob profile image
Scoutybob

I'm so sorry to hear this. Not as bad as yours but I was really taken aback by my BGSE consultant meet. I was only asked very very basic questions with a single answer wanted when things were so much more complicated and nuanced.

He wanted to do an internal exam before my second MRI. I explained I was on my period. He then soon after said 'what level is your pain up to 10, quite clearly it's not a 10 so what maybe a 4?'. I then realised it's because I was physically sat in his office whilst on my period and managing a conversation. I'd been rocking back and forth with lower back pain in the waiting room but I also think they literally think pelvic pain or nothing and if you aren't screaming then and there then you're fine.

I tried to explain that there are points I can cope (and we all get very used to dragging ourselves through still 'tough' pain and carrying on because we have to) but there are many times when it's absolutely a 10, I'm being sick, I can't move, I'm passing out...but the symptoms aren't static and constant. But he literally wasn't hearing it.

I felt so despondent. I felt like a little girl being told what she was or wasn't thinking or feeling. I can't explain it.

I really hope you can get somewhere with PALS. I don't know how they don't understand that it's not always linear and coping on the outside at points doesn't mean you aren't seriously battling.

Sparkles2000 profile image
Sparkles2000

Hi Everyone thanks for the replies. I’ve been in a few days of utter sadness.. I’m just not sure the treatment of issues around some of these areas are taken that seriously. The injection has given me different side effects.. The worst being Dyschezia and because of that I’ve been late for work and had issues which resulted in me being off sick and I’m never off work .. have walked out of meetings more than once after sitting for to long. Was unable to drive my car home.. left a restaurant on my daughters birthday after thinking maybe I could wear jeans just once but no. The thing about all this is you keep having to develop coping mechanisms.. mine are no tight fitting clothes as belly hurts with any zip waist band or button. No bread..pasta .. rice or a really starchy foods, no caffeine.. no alcohol..they make me worse.. cried at my last injection to the nurse due to just bleeding.. and a fissure off the injection.. and she said well at least if you finish the course you will have your operation! I just honestly don’t know what to think ..

TallulaShark profile image
TallulaShark

What the absolute &#%@!!!!!!

SeaHorse6 profile image
SeaHorse6

That is absolutely appalling!!!! Utter medical negligence, causing significant harm to both your physical & mental health, this consultant should be barred from practicing

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