Hey everyone. I was diagnosed back in 2012, I then had a lap to confirm it and they found extensive ovarian adhesions and scarring on my uterus. Because they couldn't find any active endometriosis the diagnosis changed to either PID or endo. I also saw fertility specialist after the surgery who told me that if I couldn't conceive after 3 months I should be referred. It has been 3 years now and most of the time I was ok, but then this year the pain came back and every month has been stronger. So bad in fact that I passed out a few months back. I went to my GP who referred me to a scan and said if it didn't show anything I would need to be referred back to the hospital. My scan was in September, it is now December and I still don’t have the result. I can’t get an appointment with that doctor again as she is always fully booked and the one that I have been seeing now is utterly clueless. I told her I am trying to conceive and she said it would take a minimum of 18 months, she completely ignored me when I said I am in pain. I have severe pain after sex, so bad that I can’t even move afterwards sometimes, I have had recurring thrush for the past 3 months and last week when I went in to speak to her she said she cannot refer me without the scan result as she “will look silly”. I tried telling her the pain is getting worse but she just talked over me and dismissed me. I don’t know what to do right now and I am getting desperate. I know my body and I know that what I am feeling is the same as I had before but worse. I am now waiting for them to find my scan result which have gone missing, but I was wondering if there is anything else I can do in the meantime to get referred? I can’t afford to go private and I think changing GP now will just delay things further. I am booking an appointment with a different doctor for next week and if they don’t have my scan I will demand a new one or a referral, but has this happened to anybody? What was the outcome?
GP won't refer me because she doesn't wan... - Endometriosis UK
GP won't refer me because she doesn't want to look silly.
![green_apple profile image](https://images.hu-production.be/avatars/1a8b7f550934f0d81cfc13794cf0e44b_small@2x_100x100.jpg)
![green_apple profile image](https://images.hu-production.be/avatars/1a8b7f550934f0d81cfc13794cf0e44b_small@2x_100x100.jpg)
They can't refuse to refer you. Keep trying to get an appointment with your doctor. Or ask her receptionist to get the doctor to call you.
If you have no luck, maybe you should make a complaint. Because they can't not refer you.
I asked my old gyne for a referral and she originally said no. And that she can treat endo. I got so annoyed with her and I kept demanding to be referred to a specialist centre. Which she said she would do. I was waiting 2 to 3 months for the specialist centre to contact me. And it turns out my gyne never referred me. I made an official complaint.. of course I just got the usual apology and how they are working on not letting this happen to anyone else.
Hopefully you can get your doctor to refer you.
That's awful hun. I work at a Gp surgery and I know they can be a bit unsympathetic some times. Don't let it go, keep pushing. See every GP if you have to until some one does something about it. You're entitled to a referral. I don't see how they can lose you're results as they all come through an electronic system so they must be able to access them. Sounds like they're fobbing you off a bit xx
The results will be available electronically. So the consultats can access that if the GP can't get them - which is an excuse. Keep pushing for the referral. Quote the patients charter to the GP - they have to refer you.
Ring the specialist centre yourself cry sound desperate just do it and then tell the doctor they are expecting a fax referral, give them the number. That's all I did, I saw a locums not sure if that would be an idea?
Thank you so much for your reply, yes I did mean retroverted uterus. Basically if the scan came back clear then I would be referred as that would mean they couldn't explain my pain in any other way and would need further investigation. I am in London, when I was referred to the hospital after the gyneo consultation I was actually treated by an endo specialist. x
Hi, I haven't had any of those exams, just the standard ones, a laparoscopy and a hysteroscopy. I don't know if he is accredited but I do know that he specialises in endo and laparoscopy both in private care and in public hospitals. Yes we do get to choose the hospitals and centres we go to here but unfortunately we can only get there with a referral from a GP. I will print out your and read it after work.
I have an appointment in 2 weeks time and will push harder for a referral.
Thank you so much x