Unknowingly discharged

[Highlandcow96]

I have today been discharged from gynaecology unknowingly after having surgery to remove severe endometriosis in October 2023, I called them end of December 2023 beginning of January 2024 and they said I would be seen in April 2024 for a follow up appointment. I have now received a letter telling me I've been discharged because I didn't make contact which is not true at all and I think it's disgusting that I've not had a follow up from my operation and just being left with the diagnosis because I have been diagnosed with a chronic illness and left so I am absolutely furious because I made contact.What can I do? I've contacted my GP and I've contacted PALs in my NHS trust I'm absolutely disgusted and feel so deflated and lost.

[KlP28]

Hello, this is disgusting. Do you have your consultants secutary phone number? If not write to them, posting it to the hospital with hospital name & address, name of consultant, department (gynaecology), and write in capital letters. Important & confidential. It will get to them. I’ve found this more effective than speaking to my consultants secutary tbh. Don’t give up getting back intouch & demanding a follow up appointment. That’s the least you deserve. Good luck! Xx

[Moon_maiden]

Keep pursuing this, there is such a lack of follow ups these days. One local hospital don’t do them unless requested by the patient. It shows a complete lack of understanding for this disease.

[KittyTherapy]

Hi, so sorry this has happened, I would be mad too!! I think you've done the best thing by contacting PALS, they should be able to assist (and quicker than the GP I suspect), hope they reinstate you and prioritise your appointment, don't give up x

[Sunset-lady]

Why do they do this? Immediately after my failed hysterectomy (as I was coming round!) My consultant told me I'd be discharged from his care. I couldn't believe it so I demanded that he didn't until I could work out what to do next. It's like "we found endometriosis- not our skill set, sorry off you go" I asked to be referred to a specialist and I'm SURE they forgot to do this. Eventually I went private. After the operation, I rang the ward as I hadn't heard from the consultant. It took him a week to ring me to explain why I hadn't had the hysterectomy. I agree with everyone. Go through your GP and get them to email them. Ring the secretary daily if necessary. It's outrageous that they do this; you just feel so alone 😔 but you're not. Keep ringing and demand an appointment. Your GP should be helpful. Good luck xxx