Hello everyone, I've popped in here because I needed to be in a space where others can relate and I don't feel alone in sharing. Since my laparoscopy near the end of last year, I've been experiencing horribly sharp stomach pains when I'm due on and awful nausea. It seems as tho the lap has made my symptoms worse not better.
I've seen my GP who did blood tests and referred me for another ultrasound and all came back clear. They wanted me to take anti-nausea medication; I took the prescription home but did a ton of research on the long term effects of taking that medication and the outlook seemed worse so I haven't taken it. It's that damned if you do, damned if you don't feeling.
I don't know whether what I need are suggestions or just a loving ear. Maybe both! Thanks for reading. I know we're all going through a tough time with endo so sending love to everyone on their journey!
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purplevelvet9
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I totally understand how you are feeling, since my last lap, I have so much pain where he took my ovary and tube out. I also had scan shows nothing, my fear is the scar tissue is really bad inside.
It's so difficult, as no one knows what us women with endo have to go through each day as they can't see it physically.
I have found as I got older I feel sickness almost like morning sickness around my period. I don't know if it's related to endo or periods in general.
I wonder what medication they will give you for the sickness? I did try acupuncture once but it did not seem to help, but it might help you?
I really wanted to reply so you don't feel alone in this x
It is always that toss up and I don't always know what the right answer is! They didn't check upper abdomen, they were keen to check my ovaries again. I've got a catch up with my GP next week so will definitely ask the question! They removed what they call a small amount as well as some residual scarring from my appendectomy from 2009 which had attached itself to my stomach.
That’s a pity, for the sake of thirty seconds they should’ve checked. It’s only because I had a Dr do an ultrasound and he did go round that they discovered gallstones, even though I’d been complaining of pain there for ages.
That was significant scaring from appendix area to stomach, not a small piece. Unless experienced at finding Endo on ultrasound it rarely shows.
Hope you get some answers soon, 🤞 with GP, let us know how it goes 🙂
Hello, I found my laparoscopy didn’t make much difference for a good probably 12 months. However, after that long period of time, pains did/have seemed to calm down. I still get my bad days, but not as many as I was getting (which was 24/7 some of the time). I have found Amitriptyline has really helped with the scar tissue/ nerve ending pain. Maybe worth a shot?
Wish you well, & you are defo not alone in all of this! 💪 🙏 take care x
That's good to know, thanks for sharing. There's hope that the pains will die down! I will definitely look into Amitriptyline. This is certainly a wild ride for all of us... Thank you for replying xx
Hi! It’s horrible the feeling of being alone when suffering. I had my lap in March and the pain is still the same I’m so disheartened because I was hoping after that I would have some relief from the pain so I feel like the lap apart from actually not feeling mad it’s confirmed endo both ovaries and back of womb. My appendix was fused to my c section also 🤦🏼♀️. I don’t know why the pain is still there every month when they said they burnt it away? Endo is such a strange thing. They gave me hormone pills but I read up on side affects and I’m too scared to take it. I’ll just manage best I can on ibuprofen and paracetamol and my heat bag. Definitely damned if you do and damned if you don’t.
I don’t have any suggestions because I really am lost with it myself but I thought sometimes just a reply is enough!
if I were you I’d get referred back to the gynaecologist and get them to do an MRI. I have Endo and Adenomyosis and neither showed on any scans for years, but finally they came up on an MRI - it’s so much more detailed. Then I had the laparoscopy. Like you, I’ve had pain since but I see an endo nurse regularly who has helped me with it. I can let you know what’s helped me if you’d like. I don’t know whether you have access to an endo specialist nurse nearby you? (I have one under the NHS but am in Greater London)
A friend of mine has had to have ops every few years, so it might be worth gettting then to check you haven’t got more growths xx
Thank you for this comment! I just got off the phone with my GP and she is referring me for an MRI and back to gynae I wouldn't have thought to ask if you hadn't suggested it.
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I wouldn't have thought to ask if you hadn't suggested it. 
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Adenomyosis, endometriosis and copper coil or IUD
