Hi girls I'm looking for a bit of advice... For the last few days I've been feeling horrendous! I've been getting the usual cramping for Endo on both ovaries but in addition to this I've been feeling horrifically nauseous then last night I started with acid reflux and this morning heartburn.... This is all following an episode of diarrhoea on Sunday... What the heck is going on? I know that I have endo on my uterosacral ligament but could this be causing all of these symptoms??? This is almost a straight repeat of how I became ill in the first place 2 years ago and ended up discovering endo. I've had cameras down my throat to check for ulcars, I've had ultrasounds and MRIs to check my gall bladder all were normal so I know (or am pretty sure) this isn't caused by anything gastric... Can Endo cause these sorts of problems?
I'm just hanging on by a thread really as I have my surgery in 2 weeks. I had to take Monday and Tuesday off as sick leave... I'm seriously considering getting my GP to sign me off for the 2 weeks.
Can anyone help or tell me what you did for these problems?
Thanks xx
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FallenAngel1984
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Hi hunny, Sorry you have been feeling so poorly I have had gastro symptoms with my endo for a few years. I have had all cameras etc also, nothing was found apart from the endo on my bowel. The biggest help I have found is to take peppermint capsules daily. I also cut right back on bread and processed food in general. It has helped, not gone away but helped. Really hope you feel better soon, not long now til the op xx
Thank you for responding Adele! 😊 I've taken OTC mess for acid/Heartburn so let's see how that does... I'm sure it's all made worse because I've not been eating all that well recently. I hardly have an appetite although when I do eat it's all pretty healthy, I'm newly veggie and Lactose intolerant so I'm pretty much vegan too. I try not to eat processed foods because there is an awful lot of crap and hidden dairy/meat products in them. I'm just trying to last out these last few days until surgery and fingers crossed it will go away! I have actually forgotten what it feels like to not feel sick and that is so sad. I even had to cry off the evening of my wedding because of it... I lasted until 6:30!! 😊
That must be horrible for you I am also a vegetarian, but have been since 8 years old. Have you tried ginger or peppermint for the nausea? My friend had terrible morning sickness when having her baby and she got some ginger sweets you can suck on, think they were from a herbal shop. Really hope that the upcoming lap offers you some relief x
Yep, I have those (gin gins) I also slice up ginger and have it in boiled water fairly regularly. I survive the terrible nights using anti emetics that are normally reserved for cancer patients... I had a heck of a time getting them but finally my gastro Dr prescribed them. Thankfully I don't have to use them that often as I have other anti emetics that get me through the not so bad times... It's horrible living your life feeling sick.. I just have to carry on... I can't stay at home all of the time otherwise I'd become a hermit... It'd would then affect my mental health and that isn't good. Most evenings are spent feeling nauseous (varying degrees).
I'm really trying not to pin all of my hopes on this lap but in the same breath I need to have something to look forward to... Also I panic about post surgery... I am emetophobic... (Oh the irony!) So I REALLY REALLY don't want to vomit after surgery! Did you suffer after your bowel surgery?
We have so much in common it's weird! I also have a phobia of vomiting, didn't realise it had a name though. I haven't actually been sick for over 12 years, I will avoid it however I can. The hospital for my lap were great about it, I explained at my pre op assessment and they assured me they will do what they can to prevent it. Then on the day of op I explained to the anethitist and he said I would have anti sickness during my op and he would advise them in recovery. When I came round I panicked a bit as I felt icky, I told them and I was given more anti sickness. Then I was fine ! No sickness at all 😊 it was my biggest worry about the surgery! x
Hahahaha madness! It's comforting to know that other people have the same fears and worries. I do feel a bit better now I've eaten something... Toast and ginger tea... I have mentioned it to everyone (drs) that I have emetephobia and that I also take medication fairly regularly. I will remind them all again on the day of surgery. I have emailed my specialist nurse to see if she can offer any advice relating to how crappy I feel. Fingers crossed! surgery is creeping up quickly now!
Hello! Really sorry to hear what you are going through yes, these symptoms all sound very familiar! I get diarrhoea and terrible nausea/ vomiting two days before my period and as well before ovulating. When you are bleeding from endo deposits, the blood outside of where it should be causes a massive reaction in the body hence vomiting, nausea and diarrhoea. When you are ovulating (according to my surgeon!) the endo deposits release an acidic solution which again totally disrupts the body causing stomach and bowel problems.
I take:
Ginger for the nausea (chop up fresh ginger In hot water and drink as a tea).
Bucchal for the nausea (can buy over the counter)
Peppermint capsules for stomach problems
Imodium two days before period and ovulation
Gaviscon for heartburn
I hope this helps and lots of good luck for the surgery xx
Thankfully I don't get the gastric problems with endo, but my husband has chronic heartburn and reflux, has had ulcers in the past. He finds a tablespoon of apple cider vinegar in a tall glass of water works wonders! Just thought it worth a share in case you want to try?
Thank you for responding. I suffer with daily nausea and control it with ginger (as you said) but also anti emetics from the GP. They used to be OTC but now are only available on prescription... For the way I take them prescription is cheaper anyway. I'm not sure if I'm even ovulating anymore as I'm birth control back to back to control the endo. I feel crappy all the time. Exhausted, painful upper abdo, pain in ovaries, nauseous and now Heartburn and Acid reflux join the party. Surely that is enough reason to be signed off work!? Why do I feel like I have to soldier on? Every night I travel home from work feeling like I'm going to fall over, I'm that tired and the nausea seems to ramp up on the journey home too so by time I get home all I feel like doing is coming into bed so I'm able to get up and do it all again the next day. I was signed off for 5 months in 2014 due to these symptoms and I guess I feel like I owe it to them to stay until the last minute before my surgery. My husband has just made me mint tea so I'm gonna go have that and see how I get on.
I'll see how the weekend goes and see how I feel on monday! I'll report back.
I hope you all have a peaceful weekend with no endo drama!
Thank you lindle! I am indeed being treated at a specialist centre that I found thanks to you! I know that I'm Lactose intolerant so avoid dairy in most cases and have 'Lactofree' products where available. I have just become vegetarian as I felt that meat was not helping my situation at all. Being vegetarian and unable to have dairy means that pretty much all of our meals are home cooked from scratch using real ingredients so not much processed food going in now at all! Whoop whoop go me! I tried cutting out wheat and gluten for 3 months and it didn't make a scrap of difference so my gastroentrologist said not to avoid it any more. I take a probiotic everyday along with a multivitamin that includes iron and B12. I feel that I'm doing everything I possibly can and nothing is working! I'm truely miserable and cannot wait for surgery!
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I have had gastro symptoms with my endo for a few years. I have had all cameras etc also, nothing was found apart from the endo on my bowel. The biggest help I have found is to take peppermint capsules daily. I also cut right back on bread and processed food in general. It has helped, not gone away but helped. Really hope you feel better soon, not long now til the op xx 
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