Hope all goes well for you and that the future will then look a lot brighter. Bowel prep can be difficult, I made myself comfortable in the bathroom for a few hours to save the back and forth from bed, but once done took the opportunity over the next couple of weeks to build up an empty, clean bowel with good food, prebiotics and probiotics to build up the healthy gut population of the digestive tract.
It was a bit like having a bowel MOT and refit. A doctor also advised me on the pre and probiotics after antibiotics as they kill off good bugs as well as the bad. Obviously ALWAYS discuss this with your doctors first and take their medical advice before taking to ensure it is right for you. I was advised to do this by one off my doctors who had done research into healthy gut micro biome.
I am awaiting total pelvic clearance hysterectomy too at a specialist endo centre and will have gynaecology, colorectal and urology consultants doing my surgery. I actually find it a comfort to be in the hands of expert consultants as at one time I was averaging two surgeries every 18 months!!! When we reach the stage of not being able to carry on in such pain, it is a privilege to be in the best of hands. I also have a fantastic endo support specialist nurse.
I’m still very frightened about the operation, that’s normal, but having had 10 previous abdominal operations know the thing I worry about the most I’m asleep for so actually have no trauma mentally from that side of an operation. As for the pain after surgery I wish I could reassure all endo sufferers that is not to be so feared as we endure and cope just the same at home regularly, but in hospital you get the best pain relief going and also know it is a positive healing process pain helping to guide us and recognise what we can and can’t do each day for our bodies healing that will hopefully diminish in the coming weeks and months. Also I always wake with a feeling of great relief and euphoria, probably the sense of it being over and the wonderful pain meds I mentioned.
It would be great if you could post your recovery positive bits and advice as it is hope I need so desperately now having been bed bound for the last 3 years and on an endo and adenomyosis journey for 44 years, problems started at age 12! I have had constant pain and discomfort, bowel, urology problems, for as long as I can remember and been hospitalised with sepsis twice from complex endo related issues and also had breast cancer 6 years ago to cope with. I have also now developed fibromyalgia too. Please do not be alarmed if you are younger and reading what has happened to me as endo is now recognised and treatment development all the time. In my day it wasn’t even acknowledged to be a problem, just one of those lady things not to be talked about, and even after diagnosis in my early 20’s I was having symptoms dismissed.
Now it is much more in the mainstream, even spoken about on this morning, so all you younger people out there will have a much brighter future. A doctor told me endo is common but extreme cases like mine with all the other health issues are very rare, just extremely bad luck and lack of treatment in my 20’s and 30’s that let it to get such a hold.
If you get the right treatment that works for you life can be good again. Knowledge and having a diagnosis is powerful for your health journey.
To yourself and all the brave and wonderful people on this feed I wish you strength, happiness and peace in your health journeys.
Hope surgery went well and you aren’t feeling too horrendous
Hi all,
Thank you for your kind words, surgery went well. I am home recovering now. Endo pain has gone entirely. Stents are uncomfortable at times but not too bad. Seem to have lost my belly button 🤷🏻♀️
Less positive news is that they found a growth on my ovary. They removed the ovary and growth and it has been sent for a biopsy. Fingers crossed all is well.
So pleased the surgery went well and endo pain has gone and you are back home. Wishing you all the best for a happy future and recovery and hope all your results come back soon and are good ones.
Take good care of yourself and don’t overdo it! Now is the time to just take each day as it comes, put yourself first and maybe we might even get a bit of sunshine this week for you to sit out in.🌞
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