Operation done - endo found again, feeling low.

[ClareLouise1980]

Hi all, further to my post earlier in the week, I went in for my surgery Tuesday. I was supposed to be out same day however was in surgery for a good few hours and he had ended up having to make 4 incisions and I had a catheter in. He performed excision of the endo which was in the vaginal vault, a cystoscopy and ureteric stenting. He had to make further incisions as he needed move my bladder out of the way and my urethrer tubes so he wouldn't damage them. I am home now, feeling ok just tired and sore as expected. He has put me on antibiotics as he said my bladder was very inflamed, however no evidence of endo in there. I have a lot of confidence in him, even though he is new consultant to me, but I am hoping and praying this is the last surgery I have. I spent 10 years being treated by same consultant and trusted him implicitly. With the fact that the new cons said that hrt after my ovary removal in June was wrong thing to do, and the fact that I still had a large amount of endo left I am now wondering whether I actually needed to have the hyst and ovaries out, although endo was found inside my uterus and my ovaries, so I guess I did. Is this called adeonomosis?? I feel let down and I know I need to look forward now and be glad I found the new cons, I guess I just feeling a little low post op. Also, the ureteric stenting, do these stay in? I didn't ask, and had my letter today to confirm what he did, and it states it was done but I don't know if they leave those stents in, didn't think to ask when saw him after surgery. Anyway, hope this post finds you all well. Lots of pain free hugs sent to you all xx

[As-17]

Awwww bless u huni sending lots of love and speedy recovery! The stents normally are taken out after few weeks so don't worry about them yet. Where did u have ur operation? I'm waiting for surgery as well got stage 4 endo

[ClareLouise1980 in reply to As-17]

Hey had it at Alexander in cheadle, Manchester. He didn't say anything about having the stents out so maybe they where taken out during surgery. Have been able go toilet this morn so helped the bloating a little bit. Were are you having your surgery Hun xx

[As-17]

Awwww good to here that ur getting there hun, I'm hopefully having it at London trust which special in endo. Don't worry about the stents at the moment! Call up the hospital and speck to consultants sectary and ask about the stents so u can put ur mind at rest. U takcre Hun xxx

[ClareLouise1980 in reply to As-17]

Yes I will ring Monday. Was knackering going funeral today, made me think what a whirlwind 2 wks I have had. With my uncle dying and then seeing this new cons, it's only just over two wks ago since first ever saw him. Am feeling low at minute, maybe the anaesthetic. Need keep an eye on belly button as well as been bleeding today. What surger y are you having done? Is it your first one or have you had other things done xx

[As-17]

Awwww bless u Hun! Thinking of u and ur family, hang in there hun I no its hard. I lost my dad and it's heartache and they are in a better place now May God be with them. Try and relax u av been through a lot sending lots of love xxx

[As-17]

My operation is going be to separate my organs and remove all the endo

[ClareLouise1980 in reply to As-17]

I had same thing but was back in 2004. I have never been out of surgery since 2002!! Endo is for keeps most of fhe time. Thanks so much for responding Hun, means a lot to have someone to talk to who understands. When is your op Hun xxx

[As-17]

Awwww don't be silly! It's so good to talk to someone who has this illness! I'm on the waiting list so don't know

[Tupster19]

Hi yes the stents have to come out can't remember how long mine was in mine over 6 weeks. Mine were in my uterus and kidney as cyst had attached to my bladder and kidney and bowel, its ok procedure not painful to take them out I watched it on the ultrasound. I've had 3 operation's over ten years for endo 1 ovary removed you do feel low after surgery lots of rest all that messing about inside. Stay well sending positive vibes x