cancelled op.. when I arrived in hospital. Feel drained. 2 yrs 6 months waiting ( this will be my third procedure )

[Kate345]

I was due to have a procedure today (13/10/22)which  I arrived at 7am my due time to be at the surgical admissions lounge. I had my pre op appointment the week before (  but due to blood testing errors I had to also return a second time on the Friday as they had forgotten to do a  certain blood test that was needed for the operation to go ahead . I had a Call yesterday afternoon confirming that I was still attending the procedure today. Which I confirmed I'd be there. 

I was all set to have my laparoscopy this morning for my stage 4 endometriosis I had arrived and was already in the lounge only be to told it was now cancelled as they were no beds available, and it wouldn't happen today. I have been on the waiting list for the procedure since April 2020 which is 2 years and 6 months of wating time, I understand that with covid and that the NHS is stretched thin that there is delays however this is still a very long wait time regardless ; especially when you are in pain and with an illness that can get progressively worse. I wasn't told any more information todayApart from 'there is no beds' and now I don't know what is happening or when my operation will happen. 

I had to try and contact various phone numbers on the way home from the hospital this morning when Been sent away to try and get some answers - I am now totally in the dark about what is happening and I have no idea when the date might be.For this operation that was cancelled I took a lot of time off work as I'm self-employed( therefore no sick pay)  and turned down a lot of work in prep for the date. I also had childcare in place.. now I'm going to have to do that all again, but I am completely in the dark and I'm unsure what work I can take on incase  it crosses with the new date. 

Feeling zonked and drained!

[Rainbow2468]

Hi that's just awful. Personally If it was me I'd keep ringing the numbers you have and I'd explain the work situation and so forth. Perhaps also ringing your Gp as when my daughter has been waiting ages, the clinical practitioner she sees writes to the hospital on her behalf too. Hope you get everything sorted out soon. Sending you a big hug

[JulesUK]

I’m so sorry this happened to you. I’d be so upset and angry. No wonder you feel so drained. I hope you get some answers soon. x

[nld941]

Hi Kate

I’m sorry this happened to you - I can empathise with you as it happened to me twice in September. Cancelled upon arrival, and it was really difficult to deal with as it had a knock on effect on other areas of my life (work etc). I contacted my GP who wrote a letter to the Hospital and contacted PALS. I finally had my op this week. Hope this helps. Take care of yourself xx

[Lindle]

You should have the contact details for the specialist endo nurse at your endo centre. Have you tried to contact them? It is so awful but keep pestering to be sure you are still next on the severe cases list.