Changed my mind about hysterectomy

[Norman1970]

Good Evening ladies, I hope your all well. I was diagnosed with severe endometriosis 21 months ago, I've had 21 zoladex injections and still having occasional pain and bloating. I was seen by my consultant in Feb this year and after having a bad week advised me I needed a hysterectomy. I waited and waited it's been cancelled on occasions however my date has arrived December! I'm thinking of changing my mind, I've had many good months recently and could really do without the hassel of surgery. I want to ask ask has anyone else changed their mind? What would happen if I change my mind? What are people's thoughts? Thanks x

[Hidden]

Hi I haven't gone through this myself but having a hysterectomy is a big decision and you have to be 110% sure that it's what you want to do. Nothing will happen if you change your mind and if your seeing an improvement from the injections then I would say maybe cancel the surgery and see how things go and you can always book it in again x

[Norman1970 in reply to Hidden]

Thanks Christina, your so right I think I need to see the consultant again to discuss things x

[Bella29]

I recommend 'heal endometriosis naturally' by Wendy K Laidlaw. She backed out of scheduled hysterectomy. Her book explains v clearly the role of uterus outside of childbearing and suggests some possible consequences of removal. Its v much that side of the argument but it may help if the medical advice u have covers the other side of it..

[Norman1970 in reply to Bella29]

Thanks Bella29 I will explore this x

[dawntildusk]

to be honest i have just had tlh hyst with bs and uoop and i instantly feel a difference. dont get me wrong its a hard recovery bit i feel better than i did already. i have two children already which prob makes things easier but it has def been a positive

[Bella29 in reply to dawntildusk]

That's fantastic! So good to hear positive stories. Glad you are feeling improvement already. Good luck with your recovery xx

[judithsimon]

hi,

its good to go for it to avoid any associated problems if you are already past your child bearing age. Its good and better.

Good luck××

[Helenababs]

I have suffered with stage 4 endo for years...diagnosed probably 4 years ago....my consultant always said hysterectomy wound be my best option.we have put it off...managing with pain killers and injection....but i have finally gave up.. I saw my consultant in August and have booked a full hysterectomy for November...my date hasn't come through yet...im desperately trying to chase it.. I cannot wait. I can't believe how much this disease has changed my life...i struggle at work...i have no social life as going anywhere causes too much pain...the short 10 min walk to town kills me... i have been depressed...and fatugued continuously....i have had enough....fingers crossed my new life is waiting for me on the other side.

[Norman1970 in reply to Helenababs]

Good luck Helenababs x

[Helenababs]

Thanks Norman1970 i hope you come to a conclusion soon....x

[Stellauk]

Your injections give similar effects as a hysterectomy. Once you stopped the injection, all the symptoms will come back. Would they/ should they carry on give you injections for this long and forever?

[Norman1970 in reply to Stellauk]

I'm not sure they said potentially they could x

[SEB88]

Hi norman1970. A hyst is a big decision, it would depend on your age, do you want children and hos bad your symptoms are. I dont mean to pry but i am sure your consultant has gone through this.

Also consider the fact that just removing your uterus without fully excising the endo will mean your symptoms may then return. Also depending on your stage and where else the endo is you should make sure your consultant is a bsge registered dr at a hospital on the bsge list. They are more qualified and have access to bowel surgeons and other areas of expertise if things are not as expected. It may be worth a look at a document called ESHRE.

The choice is of course yours, and i know there is a lot to consider. X

[Norman1970 in reply to SEB88]

Thanks seb88 yes it's a big decision x

[Leese16]

Hi! Its a big decision to make and must be really daunting. Hopefully you have a good consultant or a good gp who could mayb give u advice? I dont kow how you cope with as many zoladex injections. Apparently is only liscensed for 6 months for endo treatment so i dont know how consultants prescribe it for longer. You must be in so much pain bless you now you have arrived at the hysyerectomy stage. Get as much advice as you can. Hoping you have some brighter days ahead. Much love x

[Norman1970 in reply to Leese16]

Thanks Hun hope your well x

[Sunflower1968]

Hi I was just wondering what did you decide to do??