Anyone still suffering endo pain after me... - Endometriosis UK

Endometriosis UK

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Anyone still suffering endo pain after menopause?

9 Replies

GP mentioned that part of the reason why he doesn't recommend surgery is that i am not that far off menopause and that endo tends to disappear after that. That's the plan anyway.

So i want to know if any of that is possible? It makes sense that it should go away because the hormones subside and the bleeding stops and the endo tissue stops reacting too. But some women have claimed that its still there even after menopause which is confusing to say the least! ><

Can anyone shed any light on their personal experience and explain why this is? Even if not menopausal but have heard anything like this happening to someone else would help me out greatly.

Thanks!

M x

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9 Replies
Moon_maiden profile image
Moon_maiden

Be careful in expecting menopause at a certain age, GPs made this assumption last year, not to say it won't. I was diagnosed at 51 last year and Zoladex isn't working to bring it on early either at present.

I've read the same as you that it can still happen after. I will be interested in other replies as well.

Linley profile image
Linley

Hi

It's a very individual thing but I am glad I did not have surgery I wanted the menopause to come naturally not suddenly but didn't know it wouldn't happen until I was 58! As the periods got irregular and the menopause approached I had less pain. I had no hot flushes or mood swings so HRT was never mentioned. I was warned that the scar tissue on my ascending colon may cause some probs, it does but nothing I can't handle. That's my story perhaps after many years of pain I was lucky that I had a good menopause. But you must weigh up what's best for you as you know your own body. Good Luck!

Hello there.

Thanks for your reply. I hope you have an easy recovery. 💕

All the more reason why I'm avoiding surgery,I've already had 4 c-sections so i'm pretty much maxed out when it comes to scar tissues and adhesions. :D Something tells me that those are also causing me pain and not just the endo. So surgery not for me.

I, too am pretty sure that i am suffering from adhesion/scar tissue pain that i am unsure sometimes whether this pain is just endo pain or adhesion pain or scar tissue or just all the above. ><. I wonder how much of it is actually endo?

I have been told that my uteras is stuck to my abdominal wall and that's what that painful "lump" is that i am feeling. When asked if i could just have surgery and have it unstuck they said that it's a waste of time and high risk because its just highly likely to become stuck again if new adhesions form (oh happy days).

Anyway i'll wait until Menopause and just see what happens then. Taking each day as it comes. Concentrating on the journey rather than the destination at the moment.

M x

I had a total hysterectomy over 16 years ago and still suffer with endometriosis despite being well over age for menopause. I've been on Zoladex and Anastrozole for years. A hysterectomy is not a cure if you have widespread endometriosis that cannot all be removed for whatever reason. I've had the most advanced surgery available.

I don't know why this myth persists among medics. There are many people worldwide suffering as I am with a disease that so many doctors think is just seen in women before the menopause.

I don't know whether this is exactly helpful sorry.

Glad it wasn't cancer too. Guess the ONLY time endo can seem like a relief by comparison.

All the best

M x

It's very helpful thanks. 💕

I just wanted to know what i should be looking forward to and having read that I now know that even hysterectomy and menopause aren't really cures so i am better informed now should i ever get told to have that type of surgery to 'cure' my endo.

Any advice i get on here has greatly helped in making me see the bigger picture , so i am grateful for your insight. It's always appreciated.

Thanks!

Mx

Anastasia17 profile image
Anastasia17

Hi. From what I have read, endo can carry on after menopause as it produces its own oestrogen and, if you have ovaries, they still produce oestrogen, albeit in smaller amount. The GPs have that myth and are badly informed that the menopause solves the endo, which is not always true, above all if the endo has progressed higher in the body. The menopause may work for your endo, but keep an open mind if it doesn't. And so should your GP. There are quite a few articles online/studies if needed to convince him. x

Thank you. That's very informative. I'll mention that next time I see him.

M x

There are things that help with pain same as medication but no side effects like magnesium citrate and pycogenol.pm if you want full protocol.

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