I have only been diagnosed with Endo two years ago but had gone undiagnosed for 10 years! I had terrible periods that lasted 7 days of heavy bleeding and excruciating pain, fobbed off by many doctors telling me its all in my head. I remember one occasion when i was out with friends having lunch and had a bit of a walk home, terrible pain came on all of a sudden, i started vomiting in the street due to the pain which many passer by's though i was drunk so didn't stop to help. I started crossing a road and blacked out when i woke up i was surrounded by a mess of cars that had all swerved to avoid hitting me. A friend saw what happened and came to my rescue and had to carry me home and the pain continued for 6-7 hours.
Eventually the doctors decided to put me on the pill which settled all symptoms and i was on the pill for about 8 years or so. I then decided to come off the pill so as to start trying to get pregnant and start my family. That's when the dark cloud arrived.
I realise now the pill just masked the problem and i should have be referred for tests back when they started to avoid the present complications I'm facing.
The pain started about a month of coming off the pill and i was hospitalised almost every month. Missed so much time off work as the only pain killers that would work was codeine and i seemed to have a problem with strong medical drugs where i get dizzy and sick but it stops the pain.
For a year i carried on in this state taking painkillers 3 times a day every day. I found that if i took neurofen before the onset of pain that would work but i had to have a hot water bottle at work with me so explaining that was highly embarrassing. Occasionally if i didn't take the neurofen in time i would black out and fell down the stairs a few times.
Eventually enough was enough and i didn't leave the doctors office until the referred me to hospital.
I had my scans and they found chocolate cysts but not a clear picture. I then went in for a diagnosis lap as they suspected Endo.
The lap results came back and it was agreed i had Endometriosis stage 4. They said it was so severe they needed to refer me to John Radcliffe hospital for a specialist to work on me.
Another few months passed and i was going in for my 2nd Lap which they lasered as much of as they can. Apparently one of my ovaries was stuck to the wall of of my stomach and the other was stuck to my bowel so completely stretched in opposite directions. they flushed my tubes with dye and it run through fine so that was one relief. They needed to operate on my bowels also so had the bowel prep but the bowel surgeon was unavailable so couldn't remove the endo from the bowel so that was a waste of time.
I felt a bit better after the operation and went back on the pill reluctantly for a few months then decided to give Zoladex a try.
It has to be said i started the zoladex 6 months ago and feel great, completely pain free they introduced me onto HRT tablet also which i didn't get on with so am now going to try a different kind of HRT in patch form and see how that goes.
During the whole process i have had friendships diminish as had to cancel many events and friends unable to support me and went as far as accusing me i was making it all up for attention. My relationship broke down due to my excessive mood swings and rages.
My longing for a child and the thought that i may never have one was too much to bare at times and i went through a period where i was extremely depressed and even on the verge of suicide at one point especially after my relationship breakdown.
I felt i had no-one to turn to or talk to and very very alone. I couldn't even approach the doctors for help as i was embarrassed at how i was feeling and thought i would get turned away.
Since being on the zoladex and finding forums like this i have found the strength to think positively. I am in the process of being referred for IVF now after rekindling my relationship which i believe the zoladex has contributed too.
There is definitely not enough support out there for the emotional struggle this puts us women through as just because you cant see the illness doesn't mean it isn't there.
For me Zoladex was the best medicine and gave me a new lease of life, and hopefully I will get my miracle baby soon enough.