I have suffered with pain since I was 11 years old and am now 38. I have had 2 coils, 2 laparoscopys, tried tri-cycling my combined pill for years, the mini pill, hormone injections and HRT. I have pain for 7-10days on a 2 weekly cycle and feel like my endo rules my life. I feel like I am not able to be the mum I want to be for my girls as all my energy goes into dragging myself to work and running the house. Food shopping is my nemesis as i can't concentrate and the pain makes everything feel like a huge mountain. Im permanently tired due to the combination of pain and painkillers. My husband is amazing, but I see his face fall when I tell him the pain has come back again when we are going away, have a night out planned or even better the morning of a family wedding we were looking forward to.
I've recently had a laparoscopy and they found my coil has perforated my uterus completely and there is nothing more medically they can do. The injections were the only thing that worked but I can't be on them for more than 6 months. I've been offered a hysterectomy and I'm so worried about the HRT risks and the fact that endo can still be a problem after surgery.
I feel lost and confused but desperate to be free of the pain that's ruling my life. Any advice or experience from people who have decided to have the surgery would be so helpful right now. I never reach out like this and push through without allowing myself to really feel the effect endo has on my life so this is very alien to me.... hence the long post.... apologies and thank you!!