I have just had my third laposcropy to just confirm that I have stage four endo. My bowel is attached to the back wall of my uterus. Consultant has confirmed that there are a lot of lesions. He has got a bowel surgeon on board to assist in surgery who I am due to see 14th Aug. I am on a constant 3 month cycle of the pill to control growth. Recently was bleeding heavily whilst still on pill so advised to take a break and continue for 2 months at a time in stead. I am 45 I have completed my family therefore it has been suggested that I have a total hysterectomy. The Endo surgeon will then do a total excision of the pelvis. Then the bowel surgeon in the mean time also has to remove endo from my bowed without damaging it.
My dilemma is this is going to be big surgery and quite frankly I am scared. I have asked my consultant what I should do, do I leave it and if I do how much further damage will it cause to my bowel? Also I can feel it in the nerves on the top if my left leg. Consultant is very vague and says that if I want to leave it I can but there is no guarantee it will stop growing.
Please help has anyone else had similar surgery and if so how was your recovery? Any advice would be welcome as I don't know what to do. Because I am on the pill I am not in constant pain from this condition. I am aware of it in my bowel but nothing I can't live with. But I still suffer from extreme tiredness and tedernesss on the top of my left leg. And the random bleed I had whilst on the pill had to be treated with blood clotting drugs because it was like a tap. Any advice would be welcome.