Ovaries & tubes removed- 3 days post op - Endometriosis UK

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Ovaries & tubes removed- 3 days post op

JH21 profile image
JH21
23 Replies

Hey,

So I’ve finally had my op after it being cancelled the first time.

Was in surgery longer than expected.

I’m 3 days post op, yesterday was a pretty good day, today already feels like a really bad day.

I was told after surgery I am not allowed my HRT back due to abdominal growths they had to remove during surgery.

The hot sweats, pins and needles, etc I can just about deal with.

But I’m an emotional wreck. Feeling a sense of loss today too. I feel like a burden on everyone, feel paranoid I’m pissing everyone off just been laid about like a useless potato 🤦🏽‍♀️

I don’t know what or how to deal with it. In so much pain, allergic to morphine, tramadol and all things good in the painkiller world.

Doc also mentioned antidepressants instead of HRT to balance me out but hey guess what, allergic to those too 🤦🏽‍♀️

Help anyone? I know I’m only 3 days post op and the recovery road is a long one. Xx

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JH21
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23 Replies
Summer2020jo profile image
Summer2020jo

Hey

So glad you have finally had your surgery, I had my fingers crossed it would not be cancelled again. I hope it went well and as planned?

What did they done and remove?

Just take easy day at a time, I know it’s so frustrating, I hate being a burden and asking people to help.

Just rest a look after yourself, us ladies have been through so much over the years and now it’s time to heal and hopefully have a better quality of life.

I think day three of my surgery I was probably in the most pain, turn on and off for about a week or so.

I’m four weeks post up now, Out and about being mobile but still limited on some day-to-day activities, i’ve not return to work as quite an active job lifting and shifting and on my feet all day which is just not possible at the moment.

Activity level, I started off with short walks up and down my street, drove the car after a week a short journey, started to do supermarket shopping but need somebody to lift heavy loads. It’s so frustrating because you’re just sat at home looking at everything that you could be doing and they realise you can’t lift and shift start.

I think if I was an office job or working from home I would definitely be back to work for now.

Had a bit of a setback as I think my teeth or tooth may have got knocked in surgery the tube down my throat, so have had toothache since surgery, a mouth full of ulcers and now had a abscess for over two weeks, may have to have a root canal and teeth removed.

So the mouth pain has taken away some of my tummy discomfort and pain.

So on second lot of antibiotics now.

I hope you have lots of support and feel better soon xxx

JH21 profile image
JH21 in reply toSummer2020jo

I’m 4 days post op now, still not been to the loo either 🤦🏽‍♀️ My stomach is sooooo swollen, I literally look 7 months pregnant. As soon as I stand I can feel the pull from both sides where ovaries where.

I’m in so much pain, I’m so uncomfortable and emotional.

My 11 year old son got rushed into a&e last night.

😭😭😭

I think it’s safe to say I’m not coping very well at all.

Summer2020jo profile image
Summer2020jo in reply toJH21

So Sorry to hear this 🥺 and I hope your Son is ok?

I know what you mean with the pains too. I hope they ease soon and you get more comfortable.

I didn’t go loo for around a week and was getting big and big by the day, my tummy is still swollen now but slowly getting better.

I hope you feel better soon 🤞🏼

Xx

JH21 profile image
JH21 in reply toSummer2020jo

My swelling is getting worse!!!

I literally look 9 months pregnant, I’m usually 8/10 and if I left the house now people would naturally assume I’m ready to birth a child.

I’m sorry to keep winging but jeez I really am struggling 😭

Summer2020jo profile image
Summer2020jo in reply toJH21

I’m sorry that’s happening to you, I know I just stopped eating ( just had fruits and vegetables) by the end of the week as my tummy was getting bigger and bigger. It hurts so much and makes you feel terrible too, I felt better after I’d been a few times. I had to get the nurse to remove the stitches too as the skin was pulling and hurting to much.

Sending virtual hugs xx

Summer2020jo profile image
Summer2020jo in reply toJH21

How are you feeling now? X

JH21 profile image
JH21 in reply toSummer2020jo

Hey! Oo I’m on a bumpy old ride, that’s for sure!

My belly button is infected, day 3 of antibiotics which isn’t helping so I have to go back in to hospital today and the infection is spreading.

Still not been to the loo, day 16 now. Still look pregnant 🤰🏽 honesty don’t even feel like I need to go anymore .

Plus side my Son is much better now and that helps me seeing him make a full recovery ☺️ Xxx

Summer2020jo profile image
Summer2020jo in reply toJH21

Oh I’m so sorry to hear this, makes me sad, you’re having such a bad time. I hope the hospital can help sort something out.

But I’m so glad your Son is recovering and on the mend now fingers crossed you will very soon. Xx

JH21 profile image
JH21 in reply toSummer2020jo

I underestimated my recovery. Thought because others were better after 2 weeks I should be too, worst thing I ever did.

Every surgery is different and every recovery is different.

Xxx

Summer2020jo profile image
Summer2020jo in reply toJH21

Yes I agree I’ve definitely took longer than I thought I would too. Still have pains in tummy but guess it’s healing pains.

Still feeling rubbish now and it been 6 weeks, I thought I’d be running around feeling great by now.

Take care hope they can get the infection sorted for you, and get your bowel moving normal again xxx

JH21 profile image
JH21 in reply toSummer2020jo

I still look 8 months pregnant lol I’m not sure what I expected tbh it just wasn’t this.

It’s only day 16, hopefully another couple of weeks and il bounce back.

The multiple day naps are killing me too 🤣 I must have 4 or 5 naps a day. Feel like a newborn! Xx

JH21 profile image
JH21 in reply toSummer2020jo

Hey! How are you ? You heard of endometritis? 🤦🏽‍♀️

Thought I was going crazy yesterday 😭😭 xx

Summer2020jo profile image
Summer2020jo in reply toJH21

Do you have a injections in the uterus? What did the hospital say and do? Xx

JH21 profile image
JH21 in reply toSummer2020jo

Nothing yet, I’m currently on my 3rd set of antibiotics for an external incision infection which is green and honestly disgusting !

But I spoke to my specialist yesterday and now they want me to go in tomorrow as she thinks I have endometritis. The pelvic pain i have now, especially in my left side is next level!!

I’m progressively getting worse as the weeks go on.

It’s so depressing, I’m trying to recover from surgery and deal with now being in menopause and it’s just too much!

I feel like my body is failing my in every aspect! 😭

Summer2020jo profile image
Summer2020jo in reply toJH21

So sorry it so not going to plan, I hope they can help you 🙏🏼 Xx

curlyjo profile image
curlyjo

I'm sorry to hear you are allergic to painkillers. I dont know how I would have coped without them when I was post op. Have you tried oxycodone? My husband was allergic to morphine and this was ok for him when he fractured his back last year. I hope you find some relief for this.

Did you watch Davina's menopause programme last week? Evidently there is a new treatment coming out for those who cant take HRT for hot sweats etc. I hope you find something that works for this too.

Hope you feel better very soon and can bear the wait til you feel yourself again.

Nikkky profile image
Nikkky

Hi, wishing you a good recovery. Be kind to yourself and take it easy. I would definitely get a second opinion on the HRT because it’s so important to replace your hormones. Having no oestrogen has a huge effect on our physical and mental health. Also, testosterone should ideally be replaced too. Unfortunately we are often given incorrect advice on HRT from health professionals and suffer as a result. Even gynaecologists don’t do compulsory training in menopause and HRT- they’re just guessing most of the time and have a fear of prescribing oestrogen due to the flawed HRT study 20 years ago. Most women can safely take HRT, it’s just getting the type and dose right. What were the abdominal growths they found- endometriosis? x

girli1111 profile image
girli1111

Ask for an urgent referral to a menopause clinic. I had the good fortune of a very proactive surgeon (endo specialist unit) who referred me to meno clinic after my second ovary was removed. I had deep infiltrating endo, plus other potentially problematic conditions for considering HRT, but the surgeons overwhelming advice was that I could benefit from it and I have been on it since 2017 with no return of endo symptoms at all. I’ve always been incredibly tearful following any anaesthetic, and this plus lack of pain relief and being plunged into menopause, it’s hardly surprising that you feel so bad sweetheart! Best of luck

JH21 profile image
JH21

Hey!!!

So I’m 6 weeks post op, and I’m STILL having problems 🤦🏽‍♀️

I’m still experiencing a lot of swelling throughout the day.

The pain in my legs is horrible, it feels as though they are swollen ( but they are not) it becomes unbearable.

Still a lot of pain in my left side, hip and stomach.

Someone please tell me this is normal 🤦🏽‍♀️🤦🏽‍♀️ Xx

Summer2020jo profile image
Summer2020jo in reply toJH21

I’m 10 week post op yesterday, feeling having pains and discomfort in my tummy, GP said it’s normal and still healing inside, also have heavy leg feeling, I have a feeling as if I would be able to have a period. I feel pretty shit most of the time a bloated tummy. Feeling very depressed too. I really thought I would feel fine after a few weeks, The Doctor laughed and said it takes months! Plus everyone healing different.

Friends has said one day I’ll wake up a just feel better. Then I’ll have no regrets.

Xx

JH21 profile image
JH21 in reply toSummer2020jo

OMG really!! So I’m not on my own then!!!

Some days I don’t feel too bad, then others I just feel so crap it’s unbearable !!

I’m sorry you still feel it too!! Thanks for replying though, you’ve made me feel like I’m not going insane! Xx

Summer2020jo profile image
Summer2020jo in reply toJH21

First time this week I’m doing ok, still a bit 2 steps forward and 3 back. Have a pains from surgery still but slowly getting there. My Doctor has been very supportive too.

I think people think I’m putting on, and Luke get over it already, but it’s not just the physical it’s the mental trauma to. Lack of hormones maybe.

I’m suffering from depression badly too. Taking each day at a time. But still glad I’m not having the period and all the another pain.

I just thought I would have the Op and that would be it, but I guess everyone’s healing process is different.

Hope you are starting to feel a bit better?

If not we’re both in the insane together I guess.

Xx

JH21 profile image
JH21 in reply toSummer2020jo

Hey!

Mentally I’m struggling a lot this week.

I want to do this , go here, get this done, that needs doing.

My body just says no.

And that’s the real mental battle for me.

I’m fed up of not been able to do stuff.

Some days are much worse than others. But this recovery is horrid. 😔

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