Bladder Issues: Does anyone else suffer... - Endometriosis UK

Endometriosis UK

72,901 members53,259 posts

Bladder Issues

Klom81 profile image
5 Replies

Does anyone else suffer with this issue?

I was diagnosed with severe stage 4 endometriosis after a diagnostic lap in January. No Endo was removed as my bladder and bowel are bonded to my womb. I was supposed to be having an MRI scan on Tuesday but understandably this has been cancelled.

I have suffered with bowel and bladder issues for a couple years but usually around the time of my period or for a few days after this can include urinary retention, constipation or bowel urgency & bowel pain.

However this time my last period was 11th - roughly 17th March and for the last 24-48hrs I have been feeling the need to go for a wee but as soon as I start to wee I have a sensation/urge to stop and don’t feel I have emptied my bladder (sorry it’s a bit difficult to describe)

It isn’t like cystitis (I’ve has this once before) as there is no burning pain.

I am wondering if I have a bladder infection but I don’t want to waste doctors time given the current circumstances. I also have multiple sclerosis which I think affects my bladder but it’s hard to know what is MS and what is Endo.

Written by
Klom81 profile image
Klom81
To view profiles and participate in discussions please or .
Read more about...
5 Replies
griffij9 profile image
griffij9

Definitely get it checked out it doesn't sound right. I've never experienced it myself. I suppose it's better for your gp to try and help you than you ending up in hospital at the moment. Good luck xx

I had that. The feeling that you can only empty part of your bladder. When I told my gynaecologist he said it was common. I had mine removed Nov 2018. It was severe and my womb was attached to my bowel. Haven't had it since.

jostafford0 profile image
jostafford0

Have you been tested for Interstitial Cystitis? I was diagnosed with this at the same time as my Endometriosis diagnosis. Apparently it's quite common for both to be diagnosed.

Chicken2012 profile image
Chicken2012

I would contact your Gp. Ms does effect your bladder , spasms retention etc. Plus it could be a uti. But also my bladder reacts like this during my period , I just have endo . Take care and take safe x

mollymm profile image
mollymm

Hi there. Yes I had this really badly. For 2 years I could hardly pee at times and on a couple of occasions had to be catheterised. They hoped it would be better after my endo op but it wasn’t I was referred to a bladder specialist. My tubes had shrunk (they think because of the impact of the endo - my bladder had shrunk too). I had an operation to widen the tubes. It hurt like hell and I pee’d blood for a couple of days after, but once through that it was sooooo much better. That was 2 years ago and at my last check up they could see that they’re narrowing again so I’m being operated on again soon (well as soon as COVID-19 crisis will allow). I’m happy with having it done every couple of years so that I don’t have the UTI symptoms and the constant anxiety and retention. Good luck!!

Not what you're looking for?

You may also like...

Bladder problems 🙄

My bladder is annoying me rn haha. I’m still waiting for a diagnosis but atm I constantly feel...
princessk09 profile image

Bladder symptoms

I need some help over what the symptoms of bladder endo are. Every day I have to constantly pee...
princessk09 profile image

Issues with bladder

Good morning, I was just wondering if any of you beautiful ladies suffer with their bladder. I have...

Bowel and bladder symptoms?

Hi Hope you are well, I’m writing to see any anyone else experiences the same type of symptoms...
JJS09 profile image

Severe Bladder symptoms

Hi. I have had Endo for 9 years and undergone 2 laps with ablations. Last time it was on bladder...
Mazzao profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.