Pain in ovaries

[endogirl3]

Hey everyone, hope you're all doing okay

In the past couple of days I've had constant pain in my ovaries which I've never had before. It's a lot better today which is great but I wondered if anyone else with endo has had this? I'm on the pill but it wasn't during my period, and it also wasn't the same pain as my usual cramps.

I haven't phoned my GP - I was planning on doing it today if it was still bad but luckily it isn't. After taking years to get diagnosed and not being listened to (I'm sure this sounds familiar) I thought I'd ask on here first.

Is this another endo side effect that I just haven't had yet? Or could it be something else like cysts?

[Perla19]

Hiya, is it both ovaries? I think if it’s both sides, it might just be something else, so perhaps consider that. I say this not to dismiss your conclusion! You know your body better than anyone else. It’s just that I had pain for many years in what I thought (and the doctors thought) was my right ovary. I’d had hysterectomy for stage 4 endo and intense pain, but they left the ovaries in and this pain on the right side continued. So last year I had both ovaries removed (which put me into menopause). And the pain continued exactly the same. Now the doctors’ thinking is that it’s related to gut inflammation and possible scarring and adhesions involving the gut.

I’m doing okay and the pain is manageable. I’m 46 so not far off natural menopause, and the pain is nothing like the pain I had before hysterectomy. But I do regret having my ovaries removed. Menopause has been tough and the pain is the same as before the ovaries were taken out. So based on my experience (hopefully other people will share their experiences too!), I would say, tell the doctors where the pain is (e.g. lower pelvic pain) but don’t assume (or let the doctors assume) it’s the ovaries.

Sending strength and solidarity your way, and wishing you all the best for your health x

[endogirl3 in reply to Perla19]

I'm so sorry to hear about everything you've had to deal with. You sound like an absolute warrior! Thank you so much for your kind words. I definitely will have another think and probably will end up ringing my GP if it comes back (it's pretty much gone today.)

Thank you so much again, sending you strength right back x

[Sunrach in reply to Perla19]

Thank you for sharing your health story. My 18 month pelvis pain remains undiagnosed and interestingly I saw my gastro consultant for him to tell me CT scan clear but asked me to do an elimination diet with gluten and caffeine. ( I'm a non alcoholic vegan so lactose and alcohol aren't an issue removing from diet). Have you had any luck with your diet and any pain triggers. The reason he said this was because my imipramine is helping me with the pain so he is thinking it's bowel spasm due to food sensitivity.

I wish you and Endogirl all the best and sending love x