Pain everywhere.. struggling so bad.

[Jayleo]

The surgeon told me 7 years ago after surgery that the endo could come back and he was right. Only this time the pain is so much worse. The left side of my body is tender to touch especially around my c section where the endo was previously. My left leg constantly has a burning pain and 5 months ago I started getting some really uncomfortable chest pain and it feels like there is a lump in my throat when I swallow. I have been to a&e and even had the paramedics visit my home as the pain was that of a heart attack. I know endo can make its way around your body but I wasn't aware it can be your lungs and throat, I feel like it's everywhere and it's ruining my life, i had an MRI yesterday and I am taking HRT. I can't see a way out of this at the moment, living with this constant pain is ruining my life, I am in tears writing this. I just want the pain to go away

[Dilyn]

I've had similar recently. I was on oestrogen only HRT as had hysterectomy for endo. But yesterday my GP said that's probably activated all my endo that was left and I should have had progesterone too. Now having break off HRT for 3 months before trying new regime. Perhaps discuss the impact of your HRT with your doctor. Good luck

[Moon_maiden]

Daily pain with this is awful, I’m struggling with it. Are you on the list for an op? Is GP or consultant helping in anyway with decent pain management?

I was at A&E Xmas eve and they gave me SR Morphine to take twice a day and can still use Oramorph and other med on top of it.

It’s important to keep hope alive, whether it’s the results of MRI, a consultant appointment, anything that is a potential end to the daily grind that won’t totally go.

Research (Endinburgh Endo centre) shows Endo works in a similar way to cancer cells. When I bought this up with the pain consultant all he said was they use stronger meds because that is fatal, Endo isn’t, basically gist of anyway. Depends on perspective of fatal really.

I’ve shed so many tears in recent months I never knew I had. So with you on this.

I paid for MRI for throat and chest, nothing showed, so I’m hoping not.