suspected endometriosis…doubting myself

[Dirty_dancing26]

Hi guys, Im really just looking for advice as I’m stuck in limbo waiting for a laparoscopy. My GP and Gyne have been great, both saying I tick all the boxes for endometriosis, so I’m on the wait list for a diagnostic laparoscopy. I’m still having all my usual symptoms: constipation, nausea, the horrendous pelvic pain that comes and goes, new stretch marks that are suspected to be from what’s happening underneath rather than my skin needing to stretch (has anyone else got these?) and my pain during sex is getting worse and worse. I recently had a really bad flare that lasted weeks with a lot of pain in my hips, lower back and around my left ovary area, I got an urgent scan (ultrasound and transvaginal) and nothing was found. I was told everything looks completely normal. After this I find myself questioning if my symptoms are even real, am I imagining it? Am I exaggerating? Is the dr who told me it’s just IBS right? I see a lot about other people fainting or vomiting from pain and because I don’t does that mean my pain isn’t bad? - I also know that if that was the case I wouldn’t have the severe pain during sex. I’m just really conflicted and mentally drained I suppose. Can anyone relate?

[MonikaZa]

I am sorry you're going through this. I had similar symptoms and back pain was so bad every day that I couldn't even sit.

My gyno said it wasn't endometriosis as there was nothing in the scan. I had a laparoscopy anyway and they were all shocked to find there stage 4 endometriosis. When I asked they told me it happens quite often that endometriosis won't show on the scan. Yet, it doesn't mean you don't have it. All the best.

[Chartolfrey]

Hi. All my ultrasound showed was cysts. After my lap surgery in jan mine is severe endo. Had a urgent mri which found my cysts were endemetriomas, ado, endo, fibroids. Im currently waiting fir hysterectomy.

My lap surgery was after 7 months as i was so bad i kept going to a&e and they let gynae no.

Then i got a canellation date.

Keep pushing for it and its not in your head

[RedCat24]

Endo will not always show on scans so don't beat yourself up about it, I had numerous ultrasounds with either cysts or endometriomas then a CT scan was clear nothing on it 6 month later I had a MRI which showed adhesions and possible endo The best way to be diagnosed is thru a lap

I can faint due to pain sometimes I don't I think it's how the body copes and respondes

Keep a positive mind (I know this is hard)

I wish you all the best and hope you get some answers from your lap x

[ClaudiaGrace]

Hey, agree with everyone else it can’t always be seen in scans. Also, unfortunately as I understand most people aren’t specialists/have very little expertise when it comes to detecting endo so quite regularly get it wrong. You can get a scan with someone specialist privately for peace of mind but the lap is always going to be the most accurate for diagnosis.

[ClaudiaGrace in reply to ClaudiaGrace]

Also I don’t faint or throw up with pain and I have confirmed endo through lap. My main issue has always been pain during/after sex, this intense cramping that increases in intensity and is almost unbearable at the peak but fades away in about 5/10 mins. I also have bladder infection type symptoms. Have never had heavy periods or particularly painful periods. The condition is different for everyone so I definitely wouldn’t rule it out because your symptoms aren’t like others.