Prostap: I'm currently having prostap... - Endometriosis UK

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Prostap

Jasmin24 profile image
6 Replies

I'm currently having prostap injections. I've been on the pill prior, over a decade and a half and don't really want a coil fitted, as it's too painful.

I am struggling with the quite a few side effects, such as mood swings, hot flushes, loss of appetite etc. Also I'm still getting pains in my pelvis and legs. I have adhesions, which i still feel pulling. But I don't really know what else is available, apart from the above mentioned.

Plus side, no excruciating periods!

Many other alternative, open to suggestions!

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Jasmin24 profile image
Jasmin24
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6 Replies
Brownsugar35 profile image
Brownsugar35

Hi Jasmin24,

I had 3 injections of Prostap last year before my surgery as the endo had spreaded to the abdomen. The side effects, including hot flushes, were a living hell, and on some days I had to literally crawl out of bed. The pain you're experiencing is normal as Prostap flares up any inflammation/cyst you might have in your body before reducing it. Pain killers should help and a hot water bottle. Vit. B (I took Miligamma, complex of Vit B) helps with the mood swings and take Calcium for the bone mass you're losing. Also stay away from coffee and alcohol, if you can... (I didn't!)

I had my surgery in August and they fitted a Mirena coil in. I'm not a great fan of it due to the pain it causes but it's the second one I've had in 3 years and I'll give it a try for a couple more months. Everybody I know says the coil is the best way to keep the endo under control and the side effects, including pain, should become milder after 7 months...

Hang in there -you're not alone! X

Jasmin24 profile image
Jasmin24 in reply toBrownsugar35

Thanks Brownsugar35!

I've had prostap before, but the side effects, were milder compared to now.

I'll get some vitamins

Very much appreciated! 😊

Run4ever profile image
Run4ever

mirena fitted under GA saved my life. I’m now in hell as been TTC for 12 months so back to endo for me! Mirena was amazing ask to be put to sleep xxx

Jasmin24 profile image
Jasmin24 in reply toRun4ever

I think I was offered the mirena, but I've got severe endo.

Would it be ideal to have it fitted after surgery?

Lol if I ever get to see a specialist at this rate!

Thanks run4ever! 😊

Run4ever profile image
Run4ever in reply toJasmin24

i always have mine fitted with a laparoscopy ideally. everyone’s so different though so may not be suitable for you. I got lucky i think and i didn’t have bleeding or pain for 3 years. I cried when they removed it so i could ttc

Jasmin24 profile image
Jasmin24 in reply toRun4ever

Thank you Run4ever, do appreciate you replying to my question.

Take care 😊

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