Pain worse after prostap and bladder is none stop now every 30 mins

[Coral07]

Literally at breaking point I’ve lost everything and everyone due to this disease and I’m just giving up, specialist told me these injections would be perfect for me and now the pains been so bad I havnt even showered for 4 days sorry😂 I just want my next surgery as I know that relieves the pain😭😭 any tips what I could do to ease as I already know every lil tip🥺

[plotments]

I understand what your going through, currently on my third injection and things have just gone on overdrive......every possible endo symptom and pain I've had have all hit me at once.I know it's hard and takes all our energy at times but you need to get a shower and put some fresh clothes on...honestly it will make you feel a little better.

What pain relief are you taking, could you ask GP for something stronger?

Take care

[Coral07 in reply to plotments]

I’m having my second injection on the 20th of this month and my specialist has told me to stick with them as he thinks I will benefit untill my surgery but I’m struggling to see that view🥺 and yess been having so many bubble baths lately with help me whilst I’m in then asoon as I get out am in agony again and asked my GP and she said because I’m on 30mg cocodamol I’m not getting anything stronger, I’m just really sad and drained now and feel like am never guna be pain free

[plotments in reply to Coral07]

Can you change GP? their obviously not taking your level of pain seriouslyIf you need something stronger they should give you it, and there's a lot stronger than co-codamol that can help. You need to be persistent with them.

I can't see the benefit of having the injections either at the moment but I'm hoping it will make things less inflamed inside so when I get my op it'll be easier for them to see everything.

good luck with injection I hope your symptoms calm down soon. Have you been given any HRT to help with menopause side effects?

What surgery are you hoping to have?

[Coral07 in reply to plotments]

Deffinatly want to change GP just don’t have the energy atm so much to doo haha and I sometimes get morphine only if I get a doctor that has endo and understands other wise I get nothing🤨🙄 and yes I have estrogel but still get all the symptoms unfortunately and guna have another lap soon to see what state I’m in as my last surgeon was a complete idiot and I think I’ve been miss diagnosed I’m deffinatly worse than she thaught!!

[Jemma97]

Hey! I was on prostap for 7 months and I was bleeding through as well as having all the menopause symptoms and everytime I asked why I would be pushed away and ignored, by doctor at the time actually refused to even consider a 2nd laparoscopy until I tried the treatment because he only believed I had minor endometriosis. 6 months on from finishing the injections I complained until I got a new doctor who was a specialist and I’m 4 weeks post op now and they found it in a lot more places so it had either been misdiagnosed or it’s spread in 18 months! It tends to be doctors with slightly older views to treatments who suggest prostap but for me I wish I complained sooner, I know it’s hard but please don’t give up and also don’t feel afraid to say this isn’t working, being put through an artificial menopause is not healthy for us! If you have any questions please message me!x

[Coral07 in reply to Jemma97]

I seem to be okay when it comes to bleeding as I still have my mirena in which is good I suppose but since having injection my BPD has really been affected even after they telling my it wont🙄 and yess I actually have one of the oldest specialist which is probs whyyy but deffinatly guna push to be off them as everything just got worse and I’ll just take my chances when it comes to next surgery and hope things arnt too inflamed😬 and thankyouuu I will do I really appreciate the help🤍

[Pinkmice]

Hi

I know how you are feeling

If you have an op - this causes more scar tissue which inside of you

which in turn can cause more pain.

Injections ,painkillers only mask the endo pain of this I have suffered.

Have a shower - does feel better that you are clean and to face

another day.

The stress is not good and wish I could hug you and tell everything

is going to lovely again.

Life gives things to overcome each day

best wishes