Pain is worse now than before

[RosCookie1976]

Hi I have had my hysterectomy but it sames like i am more in pain now than I was before my op so when I get my six week cheek i think he be refuring me to special center xx

[KleineAnna]

Good morning, Sounds very familiar to me. I had my hysterectomy October 2015 and now (August 2016) I am still 24 hours in constant pain. The MRI scan finally gave a clue: I have developed a scar endometriosis just below the umbilicus. They have left the ovary in to help me going through the menopause - which turns now out was not the right decision. The next step is using a nasal spray (Synarel) and see if this makes any difference.

Hopefully you will find something that works for you very soon.

[AmyLee in reply to KleineAnna]

Hi, I'm in a similar position to you, hysto leaving one ovary in Sept and pain worse than before, tho worst is immune system done in and worse fatigue. Intrigued why nasal spray recommended?

[KleineAnna in reply to AmyLee]

Hi, every time I had a hormone medication I had severe issues: Panic Attacks, loosing balance (falling without warning) etc. The nasal spray gives me more control of the dosis then the injection. The nasal spray is taken twice a day, while with the injection I get a month in one go. If things goes wrong I can stop the nasal spray and get the body back to 'normal' quicker.

Reading further comments down the line, I am really surprised why doctors are setting expectations to be back at work after 6 weeks! I had really issues at that time and many discussions with Occupational Health! Finally the doctor kept controlling the faced in to work, but after 6 month I needed to go back to full time as the company would have then cut my payments. Before the operation it was not explained clearly how long everything will take - only said I will be back to work after 6 weeks.

Also I am making very good use of my private health insurance - they don't pay medication (I pay for some of it in cash as everything available through NHS I'm allergic to) but I have faster access to a specialist.

[RosCookie1976 in reply to KleineAnna]

Thank you hope they sort you out soon .

[RosCookie1976 in reply to KleineAnna]

Thank you

[JeanOsborne]

Hi six weeks is still very early days. It can take anything up to a year to completely recover from a hysterectomy.

[missymo]

Very early days roscookie i.m afraid.it could take months.xx

[AmyLee]

Yes have to agree, I'm nearly a year post hysto and my symptons are still changing - bowel in particular takes time to settle. I think your Dr will say give it time but no harm pushing for specialist referral, especially as it like take months to come through

[Marcia71]

I too am still in pain after hyster and I had mine in Feb 2015. I did have ovaries removed but endo still growing.

I'd push for referral to BSGE clinic but it will probably need your GP to do that and it takes time.

I also agree with others that 6 weeks v early so need to wait at least 3 months to assess but no harm in asking for next referral. You could always cancel if you feel better by appointment time.

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I'm also in more pain now than before my hysterectomy. I had my hysterectomy April this year - I am also bleeding like mini periods I'm feeling very confused xx

[RosCookie1976]

They did say to me that i could bleed up to 6 to 3 months anything after makes sure you tell them so they can check it out .#clairew23

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Thank you I have an appt with my gp on Tues xxx