Laparoscopy wait time in COVID: Hi I'm... - Endometriosis UK

Endometriosis UK

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Laparoscopy wait time in COVID

LEH199 profile image

Hi I'm currently waiting for a Laparoscopy and Hysteroscopy and was referred for these procedures on 17th September and deemed 'urgent' I wanted to ask how long people have been waiting recently due to COVID? I'm still waiting for my surgery date and I'm really suffering at the moment.

18 Replies

I think it depends where you live. I was called about 4 weeks after refferal and given a date about 6 weeks from the call so not long to go now.

LEH199 profile image
LEH199 in reply to Honey_bun

Thank you - that's good to know, hopefully a similar story for myself then...Wishing you the best of luck for your surgery!

I had to wait 4 months!

So sorry to hear this, how are you feeling now? Have you seen any improvement?

I’m in a similar situation from you, I saw my specialist last Wednesday, who has put me forward for urgent surgery due to the size of my endometrioma on my ovary. I was sent to have my pre-op assessment on the same day after my appointment at the hospital. However, I’ve not heard anything back yet and is wondering the same thing, when I will get my surgery date. We asked the doctor whether we will have to wait for like a year due to Covid and he said definitely not, but can’t give us an exact time. If only there’s a way to call up the hospital and ask what number we are on on the ‘urgent list’ and how many people are ahead of us, that would be helpful.

LEH199 profile image
LEH199 in reply to Ejl2688

It's so frustrating living in limbo, even if it's quite a wait I don't know about you but I'd still prefer to know the date. Sadly this disease just seems to be over looked and not seen at the level of severity that it should be. I really hope that they help you asap! xx

Hey!

I think it really depends on the area and the doctor. I had to wait 8 days for mine. I really hope yours is quick xx

LEH199 profile image
LEH199 in reply to ChloeL934

8 Days! I'm so jealous!! And thank you...How did it go lovely? How are you feeling xxx

ChloeL934 profile image
ChloeL934 in reply to LEH199

I know. I was very lucky, maybe because mine was done by my fertility consultant! Everything went well no complications. I feel fine. Thank you. Fingers crossed for you xx

LEH199 profile image
LEH199 in reply to ChloeL934

So glad you're doing well hun brilliant news and thank you so much xxx

I managed to get on a cancellation list for my last op. It means you get hardly any notice but it's great if you don't want to wait. Things are undoubtedly different now but I'd recommend calling the gynae department and asking to be on the list. Good luck xx

LEH199 profile image
LEH199 in reply to chloe3011

Thank you so much that's such a good idea I'll call them tomorrow, I'd do anything to get some relief. Sick of this it take so much from you and out if you doesn't it. I hope you're doing well, we're all stronger together xxx

I'm still waiting as my op date got cancelled due to this covid and it doesnt help with being on norethisterone now for 12 months straight with no breaks .... but now my gynes consultant is sending me a letter to go in to get me examined to see if a laparoscopy hysterectomy can be done as that is what I'm wanting I dont want periods anymore as they have really ruined my life and I dont want no more children neither

LEH199 profile image
LEH199 in reply to LoneWolf91

So sorry to hear this hun, I really do sympathise - We shouldn't have to suffer this way. Keep on at your consultant, lay it on as thick as you can because it's serious and they need to see this. I've received a few messages from girls saying that they managed to get their laparoscopy recently and that they believe it's because they kept nagging at their Doctor (and rightfully so)

I'm in a very similar situation. I'm waiting on an urgent laparoscopy/potential laparotomy for a 14cm cyst. Had my gynae appointment 5 weeks ago and still heard nothing, I'm going to try call them this week. The waiting around is just so frustrating! Have you heard anything how are you doing? Xx

LEH199 profile image
LEH199 in reply to Rosie0205

Hey hun sadly still waiting, I was admitted to hospital 18th - 24th December with a severe kidney infection that lead to sepsis and somehow contracted mastitis even though I haven’t had a baby/ breast feeding. The surgical and renal consultants that I saw couldn’t rule out that endo hadn’t caused the kidney infection as I do suffer with frequent UTI (and so you would think this would make the urgency to do the lap even higher) but gynae although I’m their patient wouldn’t come to see me whilst I was admitted - sad to say but the gynae team at my local hospital, even though it’s an endo centre are just so disappointing they show absolutely no care at all and so the wait continues :-( sorry long winded message. I coincidentally started a flare up last night that’s even worse today so sat here really frustrated and miserable. I hope you’ve had your date or some idea of when it may be xxx

Rosie0205 profile image
Rosie0205 in reply to LEH199

Ugh that must be so frustrating for you! I rung my Gynae last week and they told me they can’t tell me anything because they have no idea when I will get a date because of the new lockdown, they said they’ll just call me when they know something, couldn’t even give me a rough timescale. It’s so frustrating, because it’s painful and it’s giving me a bump which makes me look pregnant because it’s big, which I just want gone at this point. Just wish they could give rough timescales you know, because it’s just a waiting game now :( xx

I’ve already been waiting 6 months and have been told it could be another 18 month wait because of covid. I actually cried during my appointment! I’m not sure whether I should go back and say that I feel this is just unacceptable?!

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