70 week wait for Laparoscopy

[Mindfullness4791]

I just need to talk to someone. The wait for my Lap is 70 weeks, almost 18 months to get a diagnosis. Then I'll be back on the waiting list for treatment. I just feel numb 😢🥹 Thankfully I'm not in pain at the moment but having lots of other symptoms.

[Lindle]

Do you have the funds for a private scan as a lap is no longer the gold standard for diagnosis. If you go all that time and a lap shows deep endo you would have to wait probably the same again to get surgery in a centre. Whereas if you had deep endo found by scan now it would get you straight to a centre and just the one waiting list at least.

[Mindfullness4791 in reply to Lindle]

My scans have all been clear

[Lindle in reply to Mindfullness4791]

They usually are as sonographers in gynaecology don't have the training.

[Ruby1221 in reply to Mindfullness4791]

was it an MRI or cat scan?

Ultrasound are useless .

[Mindfullness4791 in reply to Ruby1221]

What about the Harley Street gynae. Apparently hw can diagnosed with ultrasound?

[Mindfullness4791 in reply to Mindfullness4791]

It was an ultrasound via the nhs

[Ruby1221 in reply to Mindfullness4791]

they’re pretty basic and not definitive I was told I had fibroids and ovarian cyst

MRI revealed

Adenomyosis

Uterine polyp

Fallopian torsion and both tubes full of cysts

[Ruby1221 in reply to Ruby1221]

Get an MRI

Cheaper and less invasive plus a laparoscopy won’t see inside your uterus MRI can see everything g in detail

[Mindfullness4791 in reply to Ruby1221]

You've got me thinking now! Have you seen the Harley Street clinic? Apparently they can diagnoses as they are experts and the ultrasound machines are state of the art.

[Ruby1221 in reply to Mindfullness4791]

not sure I’d trust an ultrasound after my own experiences. BUT I’d expect more from Harley st Maybe compare the price with an MRI and go from there?

[Linley]

That's a hell of a time to wait. Could you look round for an interest free credit card and go private? My friend did this for an endoscopy. Good luck 🤞

[Mindfullness4791]

I am looking into scans at a Harley Street clinic, that specialises 🙏 It is up to 5k. I work for the nhs and begrudge paying. I've already spent nearly 500 privately x

[635703]

I am so so sorry. It took me 18 months to get my second lap with excision. Been waiting 7 months for post surgery appointment to discuss this op and Consultant has sat on an abnormal Sigmoidoscopy report for 7 months. My life is ruined, I have not worked for 2 years. My Endo made me homeless. I had a hysterectomy planned but the first Dr thought this would cure my Endo. That’s 15 years out of date and no treatment or investigation of my bowel symptoms. I complained and the CEO of the Trust agreed with Dr.

Now I was rushed to hospital with rectal bleeding and it is highly likely I have Chrons disease.

I have no option to put anything on a credit card for me. Living on benefits is the absolute pits. All I can do is write complaints.

I am so ill I rang Adult Social care and I am looking to get a car plan with caters visiting me and various adaptations to my home.

What you’re experiencing is not fair but you are not alone. Do what you need to do to get what you need.

Sending you all the best wishes possible 💕

[Mindfullness4791 in reply to 635703]

Bless you. I am so saddened to read your story 😢 You have been failed miserably. I am scared at how bad the actual situation is within the nhs. I'm on minimum wage but am considering paying 400 for private scans. It is just so wrong.

Thank you. Sending you best wishes and strength 💖

[635703 in reply to Mindfullness4791]

thank you for your compassion. Please try to write in a complaint to your Trust. PILS The Patient I formation Liason Service because this could save you a lot of heartache. They have a statutory responsibility to give you care and what you need.

I would hate for you to spend money you don’t have for no reason - this is a scandal and make sure there is a paper trail.

Every good wish to you x x x

[Stephanie87]

Everything through the NHS takes a long time I'm afraid. I began my most recent visits for scans about a year and a half ago, when a rang a couple of weeks ago as I was worried a hadn't heard anything regarding my surgery I was told I still have another 6-9 months to wait for an appointment. I'm in constant pain, so fatigued all the time. I have bilateral endometriomas (6 large cysts in total) and adhesions between my uterus, ovaries and other internal organs. I wish so much I'd have thought about private healthcare before I started my doc visits / scans as it would have been sorted ages ago. Unfortunately I don't think I would be covered if I took it out now as it's already pre-diagnosed.