endo spreading fast?

[hallc1999]

Hi everybody I could really use some help, not officially diagnosed yet but have all the symptoms. Things seem to be progressing fairly quickly since I had an IUD placed and went off birth control. Earlier today I was sitting down at work and had a sharp shooting pain in my butt hole, it was debilitating. it spread to my vagina and pelvis and felt like cramps but in my butt too. has anyone ever had this? this is the first time im really experiencing this but its apparently a symptom of rectovaginal endometriosis? has this happened to anyone else and have your symptoms become worse fairly quick?

[Whoisthis]

Sounds really 😣 can you get a GP appt and chat to them? I’m not sure but could this be the coil causing the pains?

[GoldenGirl2002]

I have the same and I’ve found it’s much worse in my bum and groin area since having the coil fitted, maybe have a chat to the GP and see if there is anything they can suggest

[dolly26]

Hi, I have this pain every month and I had it before and after the coil. I do have stage 4 deep infiltrating endo so I suspect its on my bladder and bowel and rectum by now.

[Rjb_88]

I have this and it is horrible, I feel like I can’t keep my bum down when it happens! I have endo around my pouch of Douglas and that tends to be where some of the pain is

[Noodle1984]

I haven’t had a period for 3 years as we’ve stopped it with medication. But every period I would get a sharp rectum shooting pain that was only relieved by going to the toilet but super painful bowel movement. I have stage 4 recto vagina endo. I had surgery in February where it took 3 hours to remove my vagina and rectum which had fused together.

One thing about Endo is that someone with a pin point amount might have the most excruciating pain but someone with stage 4 might have very little. It’s very much a personal thing. It’s really hard to determine how “bad” or quickly it’s spreading by symptoms. That being said I would definitely have a referral to a gynecologist who specializes in Endo. Don’t leave it for years, I did because I was laughed at by my doctor when I brought Endo up. Mine was to the point that they fitted me for an ostomy bag (For poop) just in case the surgery went wrong because there was such extensive damage done. The biggest thing you can do is get on top of this and find a medication to control your hormones. Endo feeds on estrogen.