Endo with no bleeding?: I’m on the waiting... - Endometriosis UK

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Endo with no bleeding?

Sunshine1310 profile image
6 Replies

I’m on the waiting list for diagnostic lap and just looking for some advice.

My pain is always on the right side, behind my c-section scar. My daughter is coming up for 9. I have had the pain since then but had Mirena coil in between so it masked the symptoms. I’m worried that it can’t be Endo as I have never really had heavy bleeding or clots. The pain comes 1 or 2 days before period is due and lasts up to after ovulation.

Im so bloated during this time and I can’t have anything touching the ride side. Even underwear or pj’s can be uncomfortable. If I brush against the kitchen counter it’s really painful. I have sharp, burning pains. Like someone has a red hot poker and it is stabbing me on right side. Can’t walk properly as I feel the right side pulls down. Getting up from seated to standing position is very painful too.

I’m so fed up waiting now, my mental health is very low as I’m in pain for 3-4 weeks out the month.

has anyone else had similar symptoms and been diagnosed? Thanks x

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Sunshine1310
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6 Replies
KlP28 profile image
KlP28

hi. Have you spoke to your GP about this? Or had any scans or examinations. Possibly appendix related?

Hope you get the treatment you need very soon! Take care x

Sunshine1310 profile image
Sunshine1310 in reply to KlP28

hi, yes on going for a few years now. My gp wasn’t much help tbh. It wasn’t until I was under the recurrent miscarriage clinic that the doctor finally listened to me and put me on the list for diagnostic lap. I’ve had lots of internal scans and they put it down to scar tissue. My scar goes in at one side. The side where my pain is x

ccfd9 profile image
ccfd9

everyone’s endometriosis is slightly different as we are all different. The fact that your symptoms are linked to your periods implies they are hormone related, so if you get your hormones in to the proper balance, then your body can heal itself. You need a good nutritional therapist like Dian Shepperson Mills to organise your diet to reduce inflammation and correct your hormone balance. endometriosis.co.uk

hiyah Sunshine,

As the others and :

It may partly be adhensions that you can get with and without endo post C Section. I found getting my womb into a better position helped with the muscles and ligaments being over lax and over tight causing it to lean sideways. When it was heavier with blood and cramping this would then induce more pain. Again you can have this with or without endo. There are reasonable pelvic physios around if you dig but I found @corerecoverypt good for info on the subject and advice on real no nos in terms of how to do good exercises and ones to steer clear of. A lot of traditional core work can be damaging so it’s worth researching before tackling.

AppleandPear profile image
AppleandPear in reply to BloomingMarvellous

Hi there, very interested in what you say about the uterus leaning sideways and muscles and ligaments being over lax and overtight. I think I have exactly this issue as I have the same right-sided tenderness sometimes but have experimented and am really certain it's some kind of muscle related issue, and what you say makes a lot of sense. Can you talk about what you've done specifically, like which exercises? For me, as it's not a problem till I lie down on my right side. I am quite an active person and have found I can no longer do core exercises without it flaring everything up (yoga and pilates which I used to do reguarly have sometimes flared it up into extreme pain due to the large amount of core work involved); even pelvic relaxation exercises can be overdone on a bad day (I have a half-hour routine of pelvic floor exercises but they have to be done carefully according to whether my midriff feels tender already) and running often will flare it up, but the key problem for me is working at a desk and being sedentary and stressed. Less stressed periods almost fix things totally, and I now alternate between sitting and standing at my desk which is a massive help. I have felt at points that it was every internal muscle not being able to deal with any more sitting, and especially any kind of straining (if having hormonal constipation). Needless to say, high fibre and a healthy diet help. I also found that going to the gym over running was more helpful - generally have had no cramps or pains after using any bikes at the gym, the cross trainer or swimming. Anything that isn't high intensity jump-related or hitting hard surfaces repeatedly (like running) is really good, walking is really good. But most of all, trying to avoid sitting as much as possible during the day almost fixes it. But I would be extremely interested to hear more about the uterus position and how to fix this.

BloomingMarvellous profile image
BloomingMarvellous in reply to AppleandPear

will DM you

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